Pulmonary Fibrosis News Forums | Steve Marks | Activity https://pulmonaryfibrosisnews.com/forums/members/stevenfmarks/activity/ Activity feed for Steve Marks. Thu, 23 Apr 2026 13:45:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 7b0eb68b13a0030a252eb281d869ca3e Steve Marks replied to the discussion Oxygen concentrators and travel in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-concentrators-and-travel/#post-39020 Tue, 18 Nov 2025 21:25:24 -0600 Reply to Oxygen concentrators and travel

POC’s don’t go up to 6 liters. The setting is 6, but that only delivers about 2 liters. If you need more than that you will have to bring a tank on the plane.

]]> 382cb3767351e93307d8d02ed4f1bb2e Steve Marks replied to the discussion New to IPF in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/new-to-ipf-2/#post-36306 Tue, 12 Dec 2023 20:56:50 -0600 Reply to New to IPF

Go to the Univ. Of Chicago or Mayo Clinic where they specialize in PF.

]]> 8fb65d6a11b97f4fadc92b18f4694938 Steve Marks replied to the discussion Initial Oximeter readings sometimes low in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/initial-oximeter-readings-sometimes-low/#post-35712 Wed, 23 Aug 2023 21:22:08 -0500 Reply to Initial Oximeter readings sometimes low

For those that have pnuemonitus how did you get that diagnosis?

]]> ab7fc2622ac93a7c9a6db7ab723ec116 Steve Marks replied to the discussion Periodic Muscle Cramps & Pain Since IPF Diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/periodic-muscle-cramps-pain-since-ipf-diagnosis/#post-35678 Sat, 19 Aug 2023 18:12:40 -0500 Reply to Periodic Muscle Cramps & Pain Since IPF Diagnosis

I have leg cramps up into my hamstrings and toe cramping.  It is hard for me to walk a half a mile.  I am taking Baclofin for the cramps which seems to help.  My chest aches too from all the coughing and a burning feeling.  I have also had upper back tightness from all the coughing.  This disease is no fun.  I wish everyone the best in dealing with it.

]]> aeef7be7de8e1c6f3114d69b460abe50 Steve Marks replied to the discussion EGCG Green Tea Extract in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/egcg-green-tea-extract/#post-35525 Thu, 03 Aug 2023 20:52:55 -0500 Reply to EGCG Green Tea Extract

How are people dealing with the end stage part of this disease.  How have you educated your families?

]]> e494675e5bba8fb3c00dc58a333d5617 Steve Marks replied to the discussion How quickly can pulmonary fibrosis progress? in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/how-quickly-can-pulmonary-fibrosis-progress/#post-35512 Wed, 02 Aug 2023 02:56:02 -0500 Reply to How quickly can pulmonary fibrosis progress?

My brother was diagnosed in 2017 and died 2 years later.  Every disease is different.  You need to find out what type of ILD you have.  I work with my pulmonologist here in Chicago and also one at the Mayo Clinic in Phoenix.  You need spirometer tests and CT’s and maybe a bronchoscopy to do biopsy’s of your lung tissue.  Good luck.

]]> 06cd36ab089eceb402948c651c8d0631 Steve Marks became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/35969/ Mon, 14 Nov 2022 14:31:22 -0600 1