Pulmonary Fibrosis News Forums | Stephen M. Winsett | Activity https://pulmonaryfibrosisnews.com/forums/members/stevewinsett/activity/ Activity feed for Stephen M. Winsett. Wed, 15 Apr 2026 03:46:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 e18820399194f5af5f8959e240da5e00 Stephen replied to the discussion Using supplemental oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/using-supplemental-oxygen/#post-34641 Thu, 16 Mar 2023 17:28:35 -0500 Reply to Using supplemental oxygen

I have two POCs, one is 8lbs and one is 5lbs.  When I travel, especially long flights, then I use the heavier one as I have 3 batteries for that one. It is a Caire and provides pulse up to five lpm.  I am on oxygen 24/7 but never had a problem with the pulse condensers.    My home unit is continuous though.

]]> 8428b1a7c56a9aa8e99b2884b8cf61b5 Stephen replied to the discussion Questions about Ofev in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/questions-about-ofev/#post-34640 Thu, 16 Mar 2023 17:16:37 -0500 Reply to Questions about Ofev

I took Ofev 150 xtid for 3 months and had so many gastric problems and pain; I went off it for a week and got much better; so then back on for 3 more months, same problems except now I have developed a fistula between my bladder and colon in November 2022.  Up to then I had lost 40 lbs (which I needed to lose) and food was down to soup… Read more

]]> e9650b379e12539c705d295fe368f91b Stephen posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/35433/#acomment-37666 Tue, 28 Feb 2023 23:07:54 -0600 Thanks. I finally got around to checking in.

In reply to - Stephen became a registered member ]]> 7a25585ca4f7c7c4237ed73da5074c77 Stephen M. Winsett changed their profile picture https://pulmonaryfibrosisnews.com/forums/activity/p/37665/ Tue, 28 Feb 2023 23:05:41 -0600 0 a1497308c5f919e2a27d12ac3adc60ea Stephen replied to the discussion The inevitable.... in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/the-inevitable/#post-34512 Tue, 28 Feb 2023 22:54:43 -0600 Reply to The inevitable....

Hi there, I am a retired Episcopal Priest age 83, and about a year ago I was diagnosed with IPF and put on Ofev.  After four months on Ofev, it had succeeded in giving me a fistula that has become so problematic to cure because of the IPF and no one wants to do real surgery on me.  Anyhow I have read most of the comments on this subject and… Read more

]]> 1ec9e38da398fdf407427d7866378ea7 Stephen became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/35433/ Wed, 12 Oct 2022 13:17:34 -0500 2