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Stephen M. Winsett

Home Members Stephen M. Winsett
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@stevewinsett

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    Stephen M. Winsett replied to the topic Using supplemental oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 months, 3 weeks ago

    I have two POCs, one is 8lbs and one is 5lbs.  When I travel, especially long flights, then I use the heavier one as I have 3 batteries for that one. It is a Caire and provides pulse up to five lpm.  I am on oxygen 24/7 but never had a problem with the pulse condensers.    My home unit is continuous though.

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    Stephen M. Winsett replied to the topic Questions about Ofev in the forum Using Our Forums 2 months, 3 weeks ago

    I took Ofev 150 xtid for 3 months and had so many gastric problems and pain; I went off it for a week and got much better; so then back on for 3 more months, same problems except now I have developed a fistula between my bladder and colon in November 2022.  Up to then I had lost 40 lbs (which I needed to lose) and food was down to soup and…[Read more]

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    Stephen M. Winsett posted a new activity comment 3 months, 1 week ago

    Thanks. I finally got around to checking in.

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    Stephen M. Winsett changed their profile picture 3 months, 1 week ago

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    Stephen M. Winsett replied to the topic The inevitable…. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 months, 1 week ago

    Hi there, I am a retired Episcopal Priest age 83, and about a year ago I was diagnosed with IPF and put on Ofev.  After four months on Ofev, it had succeeded in giving me a fistula that has become so problematic to cure because of the IPF and no one wants to do real surgery on me.  Anyhow I have read most of the comments on this subject and a…[Read more]

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    Stephen M. Winsett became a registered member 8 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 7 months, 2 weeks ago

      A belated welcome to the PF forums Stephen, we’re glad you found us.

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        Stephen M. Winsett replied 3 months, 1 week ago

        Thanks. I finally got around to checking in.

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