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Stephen M. Winsett replied to the topic Using supplemental oxygen in the forum Diagnosis Information and General Questions 2 months, 3 weeks ago
I have two POCs, one is 8lbs and one is 5lbs. When I travel, especially long flights, then I use the heavier one as I have 3 batteries for that one. It is a Caire and provides pulse up to five lpm. I am on oxygen 24/7 but never had a problem with the pulse condensers. My home unit is continuous though.
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Stephen M. Winsett replied to the topic Questions about Ofev in the forum Using Our Forums 2 months, 3 weeks ago
I took Ofev 150 xtid for 3 months and had so many gastric problems and pain; I went off it for a week and got much better; so then back on for 3 more months, same problems except now I have developed a fistula between my bladder and colon in November 2022. Up to then I had lost 40 lbs (which I needed to lose) and food was down to soup and…[Read more]
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Stephen M. Winsett posted a new activity comment 3 months, 1 week ago
Thanks. I finally got around to checking in.
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Stephen M. Winsett changed their profile picture 3 months, 1 week ago
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Stephen M. Winsett replied to the topic The inevitable…. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 months, 1 week ago
Hi there, I am a retired Episcopal Priest age 83, and about a year ago I was diagnosed with IPF and put on Ofev. After four months on Ofev, it had succeeded in giving me a fistula that has become so problematic to cure because of the IPF and no one wants to do real surgery on me. Anyhow I have read most of the comments on this subject and a…[Read more]
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Stephen M. Winsett became a registered member 8 months ago