Pulmonary Fibrosis News Forums | Susanne | Activity https://pulmonaryfibrosisnews.com/forums/members/susanne/activity/ Activity feed for Susanne. Sat, 04 Apr 2026 22:03:26 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 e43c1d701754530e4ad4b89733c25f53 Susanne started the discussion Sarkiodosis and fibrosis in the forum PF Life: Young Adults https://pulmonaryfibrosisnews.com/forums/forums/topic/sarkiodosis-and-fibrosis/ Sun, 19 Nov 2023 14:33:19 -0600 Sarkiodosis and fibrosis

Anyone here with both pulmonary sarkiodosis and lung fibrosis? If so, how long have you lived with pulmonary fibrosis?

]]> 95bdac3b9bb15ecf0fe1b8a4c88f3f59 Susanne replied to the discussion Pulmonary Fibrosis Secondary to Sarcoidosis in the forum PF Life: Young Adults https://pulmonaryfibrosisnews.com/forums/forums/topic/pulmonary-fibrosis-secondary-to-sarcoidosis/#post-36198 Sun, 19 Nov 2023 14:30:52 -0600 Reply to Pulmonary Fibrosis Secondary to Sarcoidosis

I was recently diagnosed with sarkiodosis stage 5, with fibrosis. I’m suffering a lot. I have dyspnea every single day. And severe fatigue and no energy at all. My dr doesn’t help me at all. No medication at all due to discrimination. He apparently rather see me die. Anyone here with both sarkiodosis and fibrosis? What meds are you on?

]]> 7bb0f9094dcf6a28b7c4b6c0f352b0cd Susanne became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/40679/ Thu, 02 Nov 2023 13:44:59 -0500 0