Pulmonary Fibrosis News Forums | Sybiĺ Whimster | Activity https://pulmonaryfibrosisnews.com/forums/members/sybilwhimsters-co-uk/activity/ Activity feed for Sybiĺ Whimster. Sat, 18 Apr 2026 19:04:34 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4f9b3415f9220c705bd7d56e8a20df72 Sybiĺ Whimster posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/29557/#acomment-34980 Thu, 01 Sep 2022 14:55:20 -0500 I have been doing this trial for 12 months now. Hard to tell if it is doing any good but the clinicians seem to think so. I suppose we will have to wait until some results are published to know for sure. Is anyone else on this forum taking part in this trial and if so what are their experiences?

In reply to - Sybiĺ Whimster became a registered member ]]> 70bbddbe5a72e58cc91a567243f94062 Sybiĺ Whimster replied to the discussion Sam's Tips for Traveling with O2 in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/sams-tips-for-traveling-with-o2/#post-32886 Thu, 11 Aug 2022 21:38:36 -0500 Reply to Sam's Tips for Traveling with O2

Ijust bought a folding three wheeled walking aid for just that purpose. It has a bag attached to the front big enough to carry a 5litre tank and also serves as something to hang on to for unsteady walking. It is available in UK from a company called careco.com but lm sure will be available else where. I actually bought mine from Amazon for £36.

]]> c7a95705076f04a4edcbc64b4130a34e Sybiĺ Whimster replied to the discussion Prospective change of meds: OFEV to Perfenidone in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/prospective-change-of-meds-ofev-to-perfenidone/#post-31069 Wed, 16 Feb 2022 12:35:49 -0600 Reply to Prospective change of meds: OFEV to Perfenidone

I am taking part in the nebulizer trial. I have been doing it twice a day for 6 months. Easy to do, no side effects at all but l don’t  know if it is doing any good! I suppose l will have to wait till some results are published. But l feel perfectly well except for debilitating breathlessness.  Is there anybody out there who can share their experiences?

]]> 011a465b311527ce8d49f8bf4a516135 Sybiĺ Whimster became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/29557/ Tue, 14 Sep 2021 15:08:11 -0500 2