I received a BOLT from Duke University Hospital in Durham, NC on 10/2/22 and discharged on 10/19. The transplant team mentioned I got through in-patient quickly. I haven’t had any complications , but it is still very early in my recovery process.

I will share a positive experience though. Monday was a beautiful day here, and while wifey… Read more

I too lost over 40 pounds, but it wasn’t (and isn’t) easy. I truth, part of my success wasn’t because of my new dietary plans…it was due to OFEV. That drug was, for me, a GI catastrophe. After a year and a half, I had to give it up and went to Esbriet and stomach returned to normal, and I got my appetite back. Which means I am dieting again… Read more

Thank you ALL for your amazing support! It helps SO MUCH to not feel alone in this

I was diagnosed with IPF in 2019 after  living with my hacking cough for 6 months; so best guess is that I am now 4+ years into this miserable disease. First put on OFEV, but after 18 month or so had to give it up because of the GI trauma it caused. Been on Esbreit since May of 2021 with much improved GI.

But, as everyone here knows, the… Read more

In case you missed this article on this site. Mentions some of the current research toward a cure. None yet here are in human trials though.

Top 10 Pulmonary Fibrosis Stories of 2021

 

Joe,

Isomnia not been a problem for me on either drug.
<p style=”text-align: left;”>I hope this is helpful, and here’s to a better 2022 for us all!</p>
Russell

Hello Jofac, from Cape Fear USA. I am 69 and awaiting double lung transplants.

Keeping in mind that every one is different, disclaimer made, here’s my experience with both OFEV and Esbreit.

After 30 months on OFEV I had to quit it. The gastric distress was just too too terrible. Lost a lot of weight, 30+ pounds and my appetite. When I… Read more

I can make these recommendations, and I am 69. I lost a bunch of weight (30+ pounds) for the transplant team this way:

1. Using the My Fitness Pal app – every day I track EVERYTHING I eat and drink in the Daily Diary. Set a weight goal and target date, and the app will give you you daily calorie amount. The basic app is free, and an upgrade… Read more

My side effects, so far, have been minimal :-), however as this article shows, side effects may increase (or decrease) over time. I’m just 4… Read more

Hello Lnour, I started Esbreit in March 2021 after 15 months on Ofev. I am VERY glad I did because my GI problems have been dramatically reduced. It was so bad (10-15 x per day) , I was thinking of just giving up on the IPF meds. My Pulomonolgist suggested trying Esbreit First, and I have been extremely grateful to her. I’ve not experienced… Read more

Hello Lnour, I started Esbreit in March 2021 after 15 months on Ofev. I am VERY glad I did because my GI problems have been dramatically reduced. It was so bad (10-15 x per day) , I was thinking of just giving up on the IPF meds. My Pulomonolgist suggested trying Esbreit First, and I have been extremely grateful to her.