I was diagnosed with IPF/ILD in April 2023. My DLCO has been in decline since from 77% to now 60%. Lung volume is hanging in there but slightly reduced. My Pulm has me on 100mg of OFEV. Should be here Monday and I plan to start it Wednesday as its a day off work for me.

Just thinking about it scares me. I’m in the quality of life camp vs…

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Thanks Bessey. -I will research the Clinical Trial.

Thanks LKU

Thank You Larry- They did narrow my ILD to IPF. I have another PFT scheduled in October with a 6 minute walk. I will evaluate those results and make my determination on starting the OFEV.

I’m praying my numbers improve now I know how to approach the PFT. But that test kicks my tail and they push me hard.

Thanks Steve- I’ve already had my ILD/IPF service connected. The VA is allowing me to continue to see my pulmonologist at Vanderbilt Lung Institute.

I recently filed for an increase in disability based on my continued decline in DLCO over time.

I was diagnosed with Interstitial Lung Disease in April 2023.. Bilateral peripheral and basilar predominant reticulation with honeycombing. Findings are consistent with a UIP pattern.

As of now, not on O2 or medication. Although, my Dr has suggested I consider starting on an anti-fibrotic in the coming months. Recent PFT has further DLCO…

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