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Glad I Found this Site
I was diagnosed with Interstitial Lung Disease in April 2023.. Bilateral peripheral and basilar predominant reticulation with honeycombing. Findings are consistent with a UIP pattern.
As of now, not on O2 or medication. Although, my Dr has suggested I consider starting on an anti-fibrotic in the coming months. Recent PFT has further DLCO reduction to 71% from 77% at diagnosis. PVC in normal category
I’m not sure if I want to start the OFEV treatment considering the potential impact on quality of life at this point. I have 2 nodules which have been stable over the last 1 1/2 years. My scarring has not progressed over the period of 3 HRCT scans. Most recent Feb 2024.
They suspect my lung damage was a result of my military service exposure in the US Navy SeaBees in the late 70’s.
I’m doing my best to not think about things. But this disease, and its unpredictable nature, I admit do get the best of me sometimes. Wake up wondering if today is the day things get worse.
So I’m at a cross roads and need to face things for what they are. Its just so hard to do when I feel fine for the most part. I’m afraid to start the medication thinking maybe its a knee jerk reaction?
Anyway, glad I found the site and look fwd to sharing our journey together
Best Regards
TK
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