Linda
@Linda
•
Joined Sep 2022 •
Active 4 months ago
Biography
| Name | Linda |
| Nickname | akalittleone |
| Year of Birth | 1963 |
| Gender | Female |
| Location | Arizona |
| Relationship | Patient |
| Short Bio | Diagnosed in August of 2018. Only symptoms were clubbing of my finger nails and a little short of breath that I usually didn’t notice unless I took the stairs instead of the elevator. Was told I had 3 to 5 years to live. 4 years later I have been on OFEV and have had zero disease progression. |
| Type of Diagnosis | IPF |
| Treatment / Medical Facility | Mayo Clinich |
| Current medication regimen | Ofev |
| Lung transplantation status | to be determined |
| Supplemental Oxygen | no |
| Best advice for PF symptom management | Don’t believe the 3 to 5 year death sentence. Every patient is different so know that you can LIVE with IPF! |
| Are you currently taking an anti-fibrotic medication? | yes |
| How did you find us? | PF News Website |
| How long have you or the person that you are caring for had PF? | 4 years |
| Privacy Policy and Terms of Use | I agree |