Hi Charlene,

I can certainly sympathize with your frequent headaches, they seem to come from nowhere for no reason.

My own remedy is to have a gel filled eye mask that I keep in the fridge so it’s cool and ready at a moments notice (got it from Amazon). I also try to make sure that I don’t “overdue it” all the time. That’s something I’m so… Read more

Hi Saurahb,

I thought I had “Long COVID”, so I went to see my GP. He advised me to get checked by a Pulmonologist. One X-ray later, I was diagnosed with Pulmonary Fibrosis. This was in August, 2020.

Hi Kathryn,

I was a prolific quilter before my second exacerbation. That resulted in my O2 going up to 5L/min and a great reduction in my strength and stamina.

Now, I still try to quilt but on a smaller scale. I just can’t make full sized quilts anymore. I make placemats, table toppers and dog quilts. I’ve found these items are still… Read more

I’ve lived in the Phoenix suburbs since 1990. The summer here is brutal, it can and does kill healthy people each year, just from the intense heat. So I stay inside, with the air conditioning and drinking lots of water.

Now that I have IPF, I find it’s even harder to live through these summers. We’re expecting 116° on Monday (July 10th),… Read more

Gavin,

A hand held fan is fine, but not very effective. I use a larger fan, about 18 inches that oscillates in the room, it helps keep the air moving around and seems to help quite a bit.

Using the pursed-lip breathing is essential in my opinion. It makes you concentrate on how you’re breathing and not as much about the feeling of… Read more