Just curious as to out-of-pocket cost related to double-lung transplant.  Assuming one is on Medicare and, recognizing the multitude of coverage options involved with Medicare Part B, what would one say is an average expected out-of-pocket cost for transplant evaluation and the actual procedure.  I recognize the potential wide variances possible… Read more

Thank-you for your comments and story, Julie.  From your and other’s comments, it looks like involving hospice in the final stages is the way to go.  They should be able to help with easing suffering and making one as comfortable as possible in the final stages.

Karen, thank-you for sharing your and your husband’s experience. I am so very sorry for your loss but, glad hospice was there to help.

Thanks Jan.  I just joined the IPF Practical Support Forum on Facebook.  The more information, the better.

Betty:

Thank-you so much for sharing your husband’s story and I am so very sorry for this loss in your family.  I have an annual CT scan scheduled for next week and pulmonary function test scheduled for the following week.  Then, meet with my pulmonologist to see how things have progressed over the last year.  A little worse I fear.

Not trying to be morbid but, do have questions regarding the final stages of IPF and what to expect.  I don’t necessarily fear death but, don’t wish to suffer and I just envision the image of a fish out of water. How is one made comfortable during the final stage leading to death?

A couple of questions for those that have received stem-cell therapy for IPF:

1. Was it covered by your insurance and/or Medicare?

2. What was your cost for the procedure?

3.  What facilities are currently offering stem-cell therapy for qualified IPF patients?

Thanks for all the input.  I am turning 66 in October and was officially diagnosed… Read more

I got my Moderna booster a week ago today. Slightly sore arm and really tired the following day. Just fine the next day.