@viola
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viola conklin replied to the topic Optimum Esbriet dosage in the forum Esbriet (Pirfenidone) 1 week, 6 days ago
I too was on Esbriet but could not tolerate at any dose. I was very sick with nausea,diarrhea and terrible headaches. My Pulmonologist discontinued it.
I am now on OFEV 150 mg q 12 hours and tolerating well,just on day of vomiting and that so far is it. I think diet with protein before pill helps, I eat some low salt turkey and a piece of bread…[Read more]
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viola conklin posted an update 2 months, 1 week ago
I have not written on forum for a long time,over two years ago. I am now on oxygen at 2 liters whenever I need it for exertion. It seems that I was doing okay after I stopped the Esbriet but my LFT”S have gone down. I am to start on Ofev this month and hope the side effects don’t cause me to stop it like the Esbriet.
I am wondering what foods I…[Read more] -
viola conklin posted a new activity comment 1 year, 3 months ago
I too have had a cough,long before I was diagnosed.Some days it is worse than others and my cardiologist stopped the lisinopril because of my complaint of cough.This was before I was actually diagnosed with IPF, so now I’m wondering how long I have actually had IPF. Like you my chest gets tight and I think it is anxiety over the cough, I take…[Read more]
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viola conklin and
Augusta Adkins are now friends 1 year, 3 months ago
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I too have had a cough,long before I was diagnosed.Some days it is worse than others and my cardiologist stopped the lisinopril because of my complaint of cough.This was before I was actually diagnosed with IPF, so now I’m wondering how long I have actually had IPF. Like you my chest gets tight and I think it is anxiety over the cough, I take…[Read more]
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viola conklin posted a new activity comment 1 year, 3 months ago
Thank you for the welcome. Glad I found a forum on IPF as I am new at this,since last May.
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viola conklin became a registered member 1 year, 3 months ago
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Welcome to the PF forums Viola, we are happy to have you!
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Thank you for the welcome. Glad I found a forum on IPF as I am new at this,since last May.
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