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viola conklin

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@viola

I have not written on forum for a long time,over two years ago. I am now on oxygen at 2 liters whenever I need it for exertion. It seems that I was doing okay after I stopped the Esbriet but my LFT”S have gone down. I am to start on Ofev this month and hope the side effects don’t cause me to stop it like the Esbriet. I am wondering what foods I […] View
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    viola conklin replied to the topic Optimum Esbriet dosage in the forum Esbriet (Pirfenidone) 1 week, 6 days ago

    I too was on Esbriet but could not tolerate at any dose. I was very sick with nausea,diarrhea and terrible headaches. My Pulmonologist discontinued it.

    I am now on OFEV 150 mg q 12 hours and tolerating well,just on day of vomiting and that so far is it. I think diet with protein before pill helps, I eat some low salt turkey and a piece of bread…[Read more]

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    viola conklin posted an update 2 months, 1 week ago

    I have not written on forum for a long time,over two years ago. I am now on oxygen at 2 liters whenever I need it for exertion. It seems that I was doing okay after I stopped the Esbriet but my LFT”S have gone down. I am to start on Ofev this month and hope the side effects don’t cause me to stop it like the Esbriet.
    I am wondering what foods I…[Read more]

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    viola conklin posted a new activity comment 1 year, 3 months ago

    I too have had a cough,long before I was diagnosed.Some days it is worse than others and my cardiologist stopped the lisinopril because of my complaint of cough.This was before I was actually diagnosed with IPF, so now I’m wondering how long I have actually had IPF. Like you my chest gets tight and I think it is anxiety over the cough, I take…[Read more]

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    viola conklin and Profile picture of Augusta AdkinsAugusta Adkins are now friends 1 year, 3 months ago

    • Profile picture of viola conklin
      viola conklin replied 1 year, 3 months ago

      I too have had a cough,long before I was diagnosed.Some days it is worse than others and my cardiologist stopped the lisinopril because of my complaint of cough.This was before I was actually diagnosed with IPF, so now I’m wondering how long I have actually had IPF. Like you my chest gets tight and I think it is anxiety over the cough, I take…[Read more]

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    viola conklin posted a new activity comment 1 year, 3 months ago

    Thank you for the welcome. Glad I found a forum on IPF as I am new at this,since last May.

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    viola conklin became a registered member 1 year, 3 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 3 months ago

      Welcome to the PF forums Viola, we are happy to have you!

      • Profile picture of viola conklin
        viola conklin replied 1 year, 3 months ago

        Thank you for the welcome. Glad I found a forum on IPF as I am new at this,since last May.

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