Pulmonary Fibrosis News Forums | Nancy | Activity https://pulmonaryfibrosisnews.com/forums/members/abitothat/activity/ Activity feed for Nancy. Mon, 27 Apr 2026 14:28:41 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 da4c21edb60ac6fe3bdfcd277172b695 Nancy replied to the discussion Looking for alternatives for IPF treatment in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/looking-for-alternatives-for-ipf-treatment/#post-36154 Thu, 09 Nov 2023 21:04:17 -0600 Reply to Looking for alternatives for IPF treatment

Hi Carol,

I have been diagnosed with PF due to CREST (scleroderma) with Raynaud’s and Sjogren’s. I take 200mg Ofev/day and I’d like to get off of it. I am too tired and sometimes so tired I only sleep and have to stop for a few days. I now have high blood pressure and had a problem with my liver until I lowered the dose from 300mg/day. I have…

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]]> 65d7fa124be08baa9da7cb7273106a6b Nancy replied to the discussion Ofev Side Effects in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-side-effects/#post-35367 Tue, 11 Jul 2023 19:16:38 -0500 Reply to Ofev Side Effects

Hello! I started in October 2022, 150 mg/twice per day. I expected GI problems but never had them, however, Ofev affected my liver functions, I got high blood pressure – never had it before – and after a month I became so exhausted I had to stop taking it for a few days. When I started up the exhaustion began to build again and I have to… Read more

]]> e1bd9ce74e8f973e616f7f48af25cbe2 Nancy replied to the discussion Heal scar tissue - Is it possible? 2nd zoom call in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/heal-scar-tissue-is-it-possible-2nd-zoom-call/#post-33649 Tue, 22 Nov 2022 22:02:43 -0600 Reply to Heal scar tissue - Is it possible? 2nd zoom call

Thank you for this. Is there a chance it could be recorded and made available? Unfortunately this is a holiday in the U.S. and I hate to miss it.
Thanks!!
Nancy

]]> da1cace965c1abb51176213587257a77 Nancy replied to the discussion New Zoom meeting - taking the bull by the horn in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/new-zoom-meeting-taking-the-bull-by-the-horn/#post-33556 Tue, 15 Nov 2022 21:28:42 -0600 Reply to New Zoom meeting - taking the bull by the horn

Hi Wes, I would still like to participate. I am in Pennsylvania, EST.
Thanks!!
Nancy

]]> 4154bef7937e0b996aacaccc5c317423 Nancy replied to the discussion New Zoom meeting - taking the bull by the horn in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/new-zoom-meeting-taking-the-bull-by-the-horn/#post-33328 Thu, 20 Oct 2022 14:51:58 -0500 Reply to New Zoom meeting - taking the bull by the horn

I’m interested in joining you all in a support group. Thanks.
Nancy

]]> 209400677f2fe330d75594590c688d7a Nancy replied to the discussion Diet, alternative treatments/ healing in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/diet-alternative-treatments-healing/#post-33281 Wed, 12 Oct 2022 15:49:07 -0500 Reply to Diet, alternative treatments/ healing

Hi Wesley,

I was diagnosed in May 2021 with IPF and later with scleroderma, and have progressed enough that I just started Ofev. I am not on oxygen, but cough a lot and have reflux. I take omeprazole for GERD.

I am also treated by a traditional Chinese medicine (TCM) herbalist and drink a tea of herbs and fungi and medicine for reflux.… Read more

]]> e8ba774d232eccfc7cd2d1687ee41f95 Nancy became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/31804/ Wed, 23 Feb 2022 15:01:54 -0600 1