Jess; Look into amitriptyline (25 mg) prescription – take one hour before bedtime. A game changer for me with insomnia. ESBRIET nurse shared this tip with me. May need melatonin (3 to 5 mg) also – no prescription.

Lnour: I have been on ESBRIET for 3 years. I have not had any issues with ESBRIET, regarding foods. I started off like most with one pill, taken 3 times a day, for a week.. Then moved to 2 pills, 3 times a day,  for a week. Then to the 3 pills, 3 times a day, thereafter. Every body reacts different to ESBRIET. I do take mine 4 hours… Read more

Charlene,  Not using 02 yet, I monitor my 02 levels when I feel my breathing is labored.  With this humidity, I do see my numbers stay in the lower range of the 90%, averaging 93.  With a little exercition, they will drop as far as 88%, and I can feel the difference.  At rest, with no humidity, my numbers stay around 96.  One thing I have… Read more

Mark;

Thank you for your kind words.  There is not a road map for this journey, and we are just getting behind the wheel.  Staying positive and taking one day @ a time.

My Brother and myself both have IPF (my brother is 3 years older). He also is burden with COPD.  This topic has been on both of our minds this week, with a setback he just experienced these last 10 days.  He had been on 02 for night time, but recently found He needed it for daytime activities after a set back.  When He received the mobil 02, it… Read more