Pulmonary Fibrosis News Forums | Bonnie Thompson | Activity https://pulmonaryfibrosisnews.com/forums/members/bonniet/activity/ Activity feed for Bonnie Thompson. Wed, 22 Apr 2026 18:29:45 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 db513d7932978bac35faa94d64d0d058 Bonnie Thompson replied to the discussion New with so many questions in the forum Caregivers and Spouses https://pulmonaryfibrosisnews.com/forums/forums/topic/new-with-so-many-questions/#post-36792 Tue, 19 Mar 2024 22:35:16 -0500 Reply to New with so many questions

I have been on Ofev for 3 years 100mg twice daily. I have had only minor difficulties with it and that was helped by taking Imodium. My diagnosis of PF came 3 1/2 years ago. My most recent CT and Pulmonary Function Test showed no progression for the last year. I know Ofev doesn’t cure, but I am so grateful that (for me) it has slowed the…

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]]> 05141ace88a7b96a36f20a03bb7396b4 Bonnie Thompson replied to the discussion End of Life in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/end-of-life/#post-33913 Fri, 16 Dec 2022 18:05:34 -0600 Reply to End of Life

  • Love having an “Engraved invitation”.  What comfort!  I have also contacted and joined the 23&me study.  My sister lived with this disease for 7 years before she died in Hospice care 2 months ago.  It is clear that genetics played a very important role.  Whatever we as PF patients can do to increase scientific  knowledge is needed. I am in…

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]]> 2e438142f09f326d1bf77c9b47dc1400 Bonnie Thompson replied to the discussion OFEV cost and assistance in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-cost-and-assistance/#post-33080 Tue, 13 Sep 2022 20:40:32 -0500 Reply to OFEV cost and assistance

I also would suggest checking with Healthwell Foundation regarding the availability of grants. You can find them on the internet.  There may also be other foundations with grants but I know this one is very helpful.

]]> d48148e7a77eaead3715898dbc7e4d05 Bonnie Thompson replied to the discussion Is ipf genetic? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/is-ipf-genetic/#post-32680 Thu, 21 Jul 2022 20:52:23 -0500 Reply to Is ipf genetic?

I was diagnose with supersensitivity pneumonitis and PF a year ago.  I did have a CT scan 3 years before that for broken ribs and that showed lung scarring, so I’m not sure how long I’ve had PF.  Last week my sister who was 72 died of the same illnesses.  I am unaware if COPD is in any way related, but my Mother had that. (Perhaps an… Read more

]]> b22d61bcfba98527939a3e7303998d95 Bonnie Thompson replied to the discussion Painful hand and leg cramps in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/painful-hand-and-leg-cramps/#post-32477 Thu, 30 Jun 2022 21:17:22 -0500 Reply to Painful hand and leg cramps

Sharon,
I was diagnosed with PF a year ago although I had previous CT scans indicating scarring in my lungs.  I have muscle cramps in my feet and legs, and occasionally in my hands usually when lying down.  I, too am careful to stay hydrated.  I am on Ofev with no side effects and vitamins B12 and D3 also Zink. I would love to know what might… Read more

]]> f5f7a5496f8a4add3ecc5e72e7d70424 Bonnie Thompson posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/32840/#acomment-32878 Sat, 23 Apr 2022 15:35:12 -0500 I’m glad to have found you as well. The forum is a great source of information and support.

In reply to - Bonnie Thompson became a registered member ]]> 3d082dd17a87e8a3616c53244512d82e Bonnie Thompson became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/32840/ Thu, 21 Apr 2022 20:50:42 -0500 2