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    • #32458
      Sharon MacMillan
      Participant

      Since diagnosed with IPF in 2017, I have experienced increased body cramps throughout day or night. Anyone else experienced these? I’ve tried hydration, magnesium is normal. Would love to get relief. My IPF is mild-moderate.

    • #32477
      Bonnie Thompson
      Participant

      Sharon,
      I was diagnosed with PF a year ago although I had previous CT scans indicating scarring in my lungs.  I have muscle cramps in my feet and legs, and occasionally in my hands usually when lying down.  I, too am careful to stay hydrated.  I am on Ofev with no side effects and vitamins B12 and D3 also Zink. I would love to know what might help the cramps!

      PS I do eat my bananas. 😀

    • #32508
      Karen Martin
      Participant

      Ladies, I also have leg, foot, hand as well as rib cramps.  I have found that drinking 6 ounces of tonic water will help.  I also take potassium in addition to the magnesium, which also seems to help.  Staying hydrated is very important.  The most helpful item I have found is a little pill called Restful Legs.  I get it at Walmart.  You place two or more under your tongue when the cramps start and they will stop almost instantly!!  Not to be a commercial for a product, but this is the best help I have found.  It is OTC.  Maybe give it a try or check with your doctor.  Best of luck to you!

    • #32522
      Jerry Genesio
      Participant

      Sharon: I, too, have very painful cramps in my legs and feet, usually at night. They wake me up and force me to my feet for relief. Rubbing and standing on the cramped leg or foot helps a lot.

      I hadn’t considered restless legs medication as a possible answer as Karen suggests, but for me, it definitely is not. I take 1.5 mg of Ropinirole by prescription every morning for restless legs and it hasn’t prevented the cramps. Please let us know if you find some way to prevent these very painful events. I wish you all the best and hope you can find relief.

      • #32528
        Sharon MacMillan
        Participant

        So thankful for this discussion where people can share their experiences.

      • #32572
        Karen Martin
        Participant

        Jerry, I’m wondering if taking your restless legs meds at night might be more effective.  Perhaps their greatest efficacy has worn off by bedtime.  Just a thought.

    • #32548
      Rod Danner
      Participant

      I have found that the absolute best thing for quickly dealing with cramps is a magnesium foam called “Theraworx” it is available at pharmacies and some sporting goods stores. Just spray some on and rub it in. It helps provide almost immediate relief. Also, hydration and magnesium supplements may help some too, the hydration for sure.

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