Jerry Genesio

I was diagnosed with IPF 2 years ago but have had shortness of breath for at least 5 or more years. I’ve also had PND for years which I believe to be primarily an allergy to a silver willow tree outside my front door. I first noticed the allergy very shortly after buying and moving into a single-family home in a retirement community. I had all the…[Read more]

Thanks! I said “at least 91”. How far beyond will depend on a few variables. Actually, a lot of variables. 😉

Yes, Sylvio, I have read those diagnosed with IPF have 3 to 5 years as well. But my mother was diagnosed at 80 and lived to be 90. I was diagnosed at 81 so I plan to live to at least 91. I’ll let you know. 😉

No physician in the U.S. is likely to prescribe this before trials warrant an FDA approval.

Charlene – I also use a prescription nasal spray (Ipratropium .06%) that dries my throat as well as my sinuses, but I have noticed more throat clearing lately. I was on a .03% formula but it stopped working and my VA physician increased it to .06%. I was diagnosed with IPF in January 2020.

Charlene: I often have a glass of red wine with dinner. Also, every weekend since the pandemic confined us to quarters just about one year ago,  my wife and I play Scrabble to entertain ourselves and usually have a vodka tonic or highball, but never more than one. I was diagnosed with IPF in January 2020, but I have never been on a prescribed…[Read more]

Mark: I’ve was diagnosed with IPF about a year ago but I have no cough. I’ve also been on Gabapentin 600 mg three times daily for about ten years, which was prescribed to help relieve the pain of severe spinal stenosis. I take a number of other prescribed drugs for the stenosis and a heart condition, but I’ve never taken anything specifically for…[Read more]

I didn’t know gabaoentin suppressed the cough associated with IPF.  I was diagnosed with IPF about a year ago and have never had a serious cough, dry or otherwise but I’ve been taking 600 mg of gabapentin t.i.d for at least 7 or 8 years and that could explain why. Thanks, Jerry

Charlene – Unexplained weight loss was one of the symptoms I have had due to the IPF and since I’ve been taking 500 mg of EGCG daily I’ve noticed a very slight increase in the rate of weight loss. Whether it’s attributable to the EGCG or not I don’t know but when I finish this bottle of EGCG I don’t plan to replace it and will monitor my weight…[Read more]

Charlene – Is your physician friend writing about IPF? If so, I’d be interested in knowing if he has spoken with any who have found IPF runs in their family. My mother was diagnosed with exactly the same symptoms I have and I know there are pulmonologists who believe IPF is hereditary. Actually, the genetic angle might generate some very…[Read more]

I just researched Theraworx side effects and probably won’t use it because I’m on blood thinners and it has several rare but real blood-related adverse effects that can be severe if they’re experienced. More common possible side effects include Diarrhea, Nausea, Stomach Cramps, and Vomiting. Listed under common side effects also is cinchona,…[Read more]

Thanks, Charlene! I might consider writing about my own PF experience at some point, perhaps using a character to hi-lite symptoms like shortness of breath, fatigue, etc. Kristan Higgins’ book sounds very interesting. Let us know when it’s available.

Those who like thrillers might enjoy reading “Lamb’s Blood”. I wrote it seven years ago and the paperback, at $10.95, has done very well on Amazon.com. If you search for my name on Amazon.com, you’ll pull up other books I’ve written as well. “Lamb’s Blood” got a great review in the Maine Sunday Telegram:

Maine Sunday Telegram (July 21, 2013)…[Read more]

Dave – I hope your weight remains steady. Weight loss is my greatest concern. I, too, have been on EGCG for about a week with no weight loss so far and no other adverse reactions either. Thanks for posting your progress. I’ll be interested in what you have to report a month from now..

That’s good news Ed Brownstein! My only concern has been weight loss. I started on 500 mg EGCG QD about a week ago and hope I can keep or increase mt weight. Thanks for posting your results.

Charlene: My mother had IPF and RLS, I have both as well, and my younger brother has RLS and probably has IPF also. I agree with those who suspect they are both genetic and hereditary. I’ve been taking Ropinirole 0.5 mg QD for several years and it has helped a lot. Ropinirole<span style=”color: #222222; font-family: Roboto, arial, sans-serif;”>,…[Read more]

I’m sorry to hear about the fever and malaise that you’ve had, Charlene. I’ve not had any of the ailments you mention and hope you’ve shaken them by now.

Stay well!