@rammbo
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Douglas k Freeman and
Bill Mattila are now friends 5 months, 1 week ago
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Douglas k Freeman and
Allan Byron are now friends 5 months, 1 week ago
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Douglas k Freeman and
Steve Dragoo are now friends 5 months, 1 week ago
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Douglas k Freeman and
Jerry Genesio are now friends 5 months, 1 week ago -
Douglas k Freeman and
eileen d koster are now friends 5 months, 1 week ago
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Douglas k Freeman replied to the topic Portable Oxygen Concentators in the forum Diagnosis Information and General Questions 5 months, 1 week ago
I can speak to what I know. I had Inogen and It was very nice. however, the highest flow rate was only 6-8 liters and I needed 10. So it did not meet my needs. The unit only weighed 6 lbs very light and with extra battery packs and a car charger you are good to go! So yes if you only need 6-8 liters that is the one you want, also it is covered by…[Read more]
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Douglas k Freeman posted an update 5 months, 1 week ago
I was wondering about anyone that is doing or has done laser therapy for IPF? Can anyone tell me how the therapy has changed their disease for the better or no change? Also the cost as well as insurance coverage? Personally, my disease progression has been aggressive and I need to start making some informed decisions on where and what I do next!…[Read more]
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Douglas k Freeman posted a new activity comment 5 months, 1 week ago
Thank you, Charles, for the friendship invitation.I need to talk to and make as many friends I can from this forum.
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Douglas k Freeman and
Charles Kalman are now friends 5 months, 1 week ago-
Thank you, Charles, for the friendship invitation.I need to talk to and make as many friends I can from this forum.
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Douglas k Freeman posted an update 5 months, 1 week ago
@christeenen Yes welcome Christeen I just joined yesterday.MY journey with PF started about 9 months ago and has been very aggressive if I go by my oxygen flow rate.it started at 3 liters in March now I’m on 10 liters in December kind of scary if the oxygen flow rate is an indicator for disease progression? Well good luck and God Bless!
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Douglas k Freeman posted a new activity comment 5 months, 1 week ago
Welcome, Raymond! I just joined yesterday, This is a great way to become informed, Good luck !
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Douglas k Freeman posted an update 5 months, 1 week ago
was at a was wondering about my oxygen therapy! I started out last March with oxygen therapy due to shortness of breath caused by PF. I also know it is PF because I was a Union painter for 35 years exposed to a plethora of chemicals and paint coatings , solvents, etc. When I began oxygen it was at a flow rate of 3 liters a minute I guess for…[Read more]
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Douglas k Freeman posted a new activity comment 5 months, 1 week ago
I just tried to call and left them a message hopefully they call back today. Thank you again for reaching out.😁
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Douglas k Freeman posted a new activity comment 5 months, 1 week ago
Thank you so much, Tricia I will call and let you know what happens?
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I just tried to call and left them a message hopefully they call back today. Thank you again for reaching out.😁
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Douglas k Freeman replied to the topic GLPG1690 Clinical Trial in the forum Clinical Trials 5 months, 1 week ago
how will this affect your progression of the disease if you are receiving a placebo? I live in Florida and I’m trying to get help paying for Esbtiet it is 1080.00 a script per month the insurance copay that I cannot afford needs help with some guidance. I don’t know what to do because my disease is progressing quickly. I’m scared I don’t want to…[Read more]
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Douglas k Freeman and
Mark Koziol are now friends 5 months, 1 week ago -
Douglas k Freeman posted an update 5 months, 1 week ago
I just wanted to ask someone if they know where I can receive resources for medical treatment medication primarily. Esbriet my copay is 1080.00 dollars once a month. Just for the one medication. Please help me if you can I live in Florida.
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Hi Doug, I am on Esbriet and do not pay anything for this medication. Call Genentec Patient Foundation at 1-888-941-3331 (option 5). They will let you know what forms you need to fill out to cover the cost of your Esbriet. It does not matter what state you live in.
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Thank you so much, Tricia I will call and let you know what happens?
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I just tried to call and left them a message hopefully they call back today. Thank you again for reaching out.😁
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Douglas k Freeman became a registered member 5 months, 1 week ago
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Hi Douglas, we are happy to have you as a member of the pf forum. Welcome!
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