Bonnie Thompson

• Love having an “Engraved invitation”.  What comfort!  I have also contacted and joined the 23&me study.  My sister lived with this disease for 7 years before she died in Hospice care 2 months ago.  It is clear that genetics played a very important role.  Whatever we as PF patients can do to increase scientific  knowledge is needed. I am in my…

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I also would suggest checking with Healthwell Foundation regarding the availability of grants. You can find them on the internet.  There may also be other foundations with grants but I know this one is very helpful.

I was diagnose with supersensitivity pneumonitis and PF a year ago.  I did have a CT scan 3 years before that for broken ribs and that showed lung scarring, so I’m not sure how long I’ve had PF.  Last week my sister who was 72 died of the same illnesses.  I am unaware if COPD is in any way related, but my Mother had that. (Perhaps an inheri…[Read more]

Sharon,
I was diagnosed with PF a year ago although I had previous CT scans indicating scarring in my lungs.  I have muscle cramps in my feet and legs, and occasionally in my hands usually when lying down.  I, too am careful to stay hydrated.  I am on Ofev with no side effects and vitamins B12 and D3 also Zink. I would love to know what might he…[Read more]