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Bonnie Thompson replied to the topic End of Life in the forum Diagnosis Information and General Questions 1 month, 2 weeks ago
- Love having an “Engraved invitation”. What comfort! I have also contacted and joined the 23&me study. My sister lived with this disease for 7 years before she died in Hospice care 2 months ago. It is clear that genetics played a very important role. Whatever we as PF patients can do to increase scientific knowledge is needed. I am in my…
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Bonnie Thompson replied to the topic OFEV cost and assistance in the forum Ofev (Nintedanib) 4 months, 2 weeks ago
I also would suggest checking with Healthwell Foundation regarding the availability of grants. You can find them on the internet. There may also be other foundations with grants but I know this one is very helpful.
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Bonnie Thompson replied to the topic Is ipf genetic? in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 1 week ago
I was diagnose with supersensitivity pneumonitis and PF a year ago. I did have a CT scan 3 years before that for broken ribs and that showed lung scarring, so I’m not sure how long I’ve had PF. Last week my sister who was 72 died of the same illnesses. I am unaware if COPD is in any way related, but my Mother had that. (Perhaps an inheri…[Read more]
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Bonnie Thompson replied to the topic Painful hand and leg cramps in the forum Using Our Forums 7 months ago
Sharon,
I was diagnosed with PF a year ago although I had previous CT scans indicating scarring in my lungs. I have muscle cramps in my feet and legs, and occasionally in my hands usually when lying down. I, too am careful to stay hydrated. I am on Ofev with no side effects and vitamins B12 and D3 also Zink. I would love to know what might he…[Read more] -
Bonnie Thompson posted a new activity comment 9 months, 1 week ago
I’m glad to have found you as well. The forum is a great source of information and support.
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Bonnie Thompson became a registered member 9 months, 2 weeks ago
Welcome to the forum community Bonnie, we’re glad you found us!
I’m glad to have found you as well. The forum is a great source of information and support.