Sharon MacMillan

How I agree with the Lord listening and come to us. He has been in our future, in our present and in our past. He will not disappoint. Thanks for your great encouragement. God give you many opportunities to testify of His faithfulness and active care.

I am so glad you posted your post transplant journey. There are many of us waiting on the list, some with set backs, others anxious for many reasons as we face such an important procedure. I do hope that your new life will bring many new blessings with those who love you and value your presence. It is so important to hear from people like…[Read more]

Thanks for sharing your experience. I am just now being prepared to be placed on a transplant list. Would love to hear that experience if you want to share.

Good advice. Eating after 7 is not worth it.

Dear Charlene
It may be that a support group would be a viable option if the news is difficult. We need to be able to have understanding people to share our hard news with. This is such an up and down journey, but underneath are hard realities. I was thrilled that I received OPEV but the truth is that I needed it to slow down the disease.…[Read more]

So thankful for this discussion where people can share their experiences.

So I feel pretty much the same as I did when first diagnosed:  Tight chest, fatigue, morning cough, shortness of breath with exertion.  Then I was hospitalized with shortness of breath, but it was due to anxiety.  The medical staff didn’t know the cause of anxiety.  It can be from the disease itself, or two other reasons.  I was surprised to find…[Read more]