I am sorry to hear your father is having a problem with shortness of breath.  It is very scary, I know.  I have been diagnosed with Pulmonary Fibrosis (2018) and take OFEV.  I am on 4 L oxygen., 24/7, for about a year now.  I was having a very hard time breathing just by taking a couple steps.  My Oximeter would go down to 74 and it would… Read more

Hello All,

I too have been fighting headaches and I contribute it to possibly lack of oxygen and/or dry sinuses, if not both.  I am on oxygen and I do use a humidifier on my concentrator and that has helped.  I would wake up every morning with a headache.  My morning routine includes a few doses of saline spray and then it would seem to go… Read more

Hello Charlene!  I am one of those that dread the wintertime.  Not so much because of my compromised lungs and the cold temps, but because here in western Pennsylvania, we have a whole LOT of cloudy, dreary days and it just seems to suck the energy out of me.  I seem to be tired, have brain fog, loss of ambition, and quite lethargic on those… Read more

I am on oxygen 24/7 but I only change my canula every other month, and the oxygen tubing about every six months. I clean the canula every day with vinegar and soap and then rinse with hot water. Use the vinegar first and then the soap and water. Rinsing it will take away the vinegar smell. As for the long tubing, I gather it up, plug the… Read more

If I feel the need to wear a mask, I do and I really don’t pay any attention to anyone’s opinion. They aren’t fighting to breath! I use a VOG mask. A little pricey but worth it. Although, I don’t wear my mask into the bank. Don’t want to scare anyone. LOL I also purchased two “Gators” on Amazon, which work well. (You can also pull the… Read more

You are not a Grinch or Scrooge. Christmas Eve 2018, I ended up in the hospital. They thought I had pneumonia. As usual, I was supposed to host Christmas dinner for the family. My son, his wife and his three adult sons. Because I was in the hospital, family Christmas fell apart. I was released the 27th and felt fine, thankfully…they were… Read more

Charlene, so happy for you! And thank you for sharing your adventures and your pictures. You enjoy your dream vacation. You deserve it!!

I have been wondering about this. I seemed to have lost quite a bit of hair the last several months. While I was at my last hair appointment, my hair dresser said I was losing my hair, and maybe should have my thyroid tested. I did have it tested and the thyroid is just fine. I mentioned it to my GP and he said it might be a side effect of… Read more