Personally am not a sufferer but my late husband was and am sure end of life has been raised before so type away.  Knowledge (aka personal experience) is power and all that.

Hugs for what you are going through.

Thank you Christie.

Whilst his Inquest is still to take place I can maybe ‘help’ by describing my late husband’s passing.  He died at home in my arms, gasping for breath and begging me to turn the oxygen up.  The machines were already at maximum (2x9L), he’d gone through a whole series of face masks with various limiters and faced with his ever-increasing need… Read more

Agree with Steve, at those levels you’ll probably find a small face mask is better for you.

Interesting…. 12+ years ago my late husband was encouraged to take LIV-52 supplement by a pharmacist in Cyprus to protect his liver (he liked a drink).  He started to suffer breathlessness but we didn’t connect the two. In 2016 he was diagnosed as ‘possible IPF’ but never definitively confirmed. His feratin level at one point was 800+… Read more

Hugs Vishal. I lost my husband recently – he was on 4 litres O2 on ‘as necessary’ basis but was hospitalised after a fall when he broke his hip and multiple ribs. Very quickly his oxygen requirements increased and when he was discharged four weeks later (still with broken hip and ribs) his prescription was for 12 litres O2 24/7.  Thanks to… Read more

Thanks for replying Mark. There is to be a Coroner’s Inquest so maybe that will shed some light.

Just to clarify – both my husband and I are called Chris. He has been struggling with increasing breathlessness (‘suspected IPF’) since 2016 and but has coped for the last year or so on 4ltr oxygen on ad hoc/when necessary basis until he broke his hip and was hospitalised. They put him on oxygen 24/7 – whether that was to help with pain… Read more