Pulmonary Fibrosis News Forums | Chris lynch | Activity https://pulmonaryfibrosisnews.com/forums/members/clynch/activity/ Activity feed for Chris lynch. Fri, 17 Apr 2026 01:23:18 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 c124a6d58bd306023d5a32a5cf1cdab2 Chris lynch started the discussion Mayo Clinic in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/mayo-clinic/ Fri, 01 Dec 2023 12:47:25 -0600 Mayo Clinic

Has anyone used Mayo Clinic for diagnosis and treatment of ILD?

]]> b01f70fdb5732ffd31edb26859401d6d Chris lynch replied to the discussion Ofev and zinc in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-and-zinc/#post-36188 Fri, 17 Nov 2023 03:00:25 -0600 Reply to Ofev and zinc

I’ve been taking OFEV for about 7 months. 2 weeks ago I suffered a stroke. Strokes are a side effect of this drug. Anyone else have this issue??

]]> 05de18397c4b99a2cee7587830c0084f Chris lynch replied to the discussion Looking for alternatives for IPF treatment in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/looking-for-alternatives-for-ipf-treatment/#post-36144 Wed, 08 Nov 2023 15:47:02 -0600 Reply to Looking for alternatives for IPF treatment

Carol I have been on Ofev for 8 months. Last week I had a stroke, one of the side effects of Ofev. ????

]]> cebdca1bcf3bb7b1c217484cf082232c Chris lynch replied to the discussion Saracatinib in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/saracatinib/#post-35891 Mon, 04 Sep 2023 18:34:03 -0500 Reply to Saracatinib

Probably bankruptcy.

]]> b6f7bd1d134eb7cb45786e6e91570c60 Chris lynch replied to the discussion Saracatinib in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/saracatinib/#post-35890 Mon, 04 Sep 2023 15:25:27 -0500 Reply to Saracatinib

Millie where does the $28k cost

Info come from? Thanks

]]> 02b988b427fb91d506715fe6e6977412 Chris lynch replied to the discussion Ofev and zinc in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-and-zinc/#post-35713 Wed, 23 Aug 2023 22:31:51 -0500 Reply to Ofev and zinc

Jose I agree that physicians are unsure about the zinc etc. my pulmonologist recommended recently that we hold off until we see how the Ofev does. Frustrating

]]> b2a11125d16ef96d2c1dd3296482b591 Chris lynch posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/39166/#acomment-39989 Fri, 18 Aug 2023 00:24:35 -0500 Sam I had a heavy metal test results low zinc and high in antimony which is bad for the lungs.

In reply to - Chris lynch to Sam123 @sam123 Sam I was advised that I should have a test To measure my level of metals in my system. Once this is done I can move ahead with the Zinc and other components including the […] ]]> bb6d952d051a0ffbcc9e4b49fad2f0c1 Chris lynch started the discussion Ofev and zinc in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-and-zinc/ Thu, 17 Aug 2023 23:21:04 -0500 Ofev and zinc

Has anyone taking Ofev supplemented their treatment with the zinc and related supplements? . And how has their pulmonologist reacted to this approach?

Thanks

]]> 6aa957cc6dd96e0211f2a909bd4a3121 Chris lynch started the discussion This maybe old news but important nonetheless in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/this-maybe-old-news-but-important-nonetheless/ Fri, 07 Jul 2023 13:07:53 -0500 This maybe old news but important nonetheless

Zinc Could Hold Key to Reversing IPF, Leading Pulmonologist Dr. Paul Noble Says

]]> a8ffb77dc336021781d2f758f4c1ce12 Chris lynch replied to the discussion Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/zinc-in-the-role-of-lung-fibrosis/#post-35341 Thu, 06 Jul 2023 16:16:54 -0500 Reply to Zinc in the Role of Lung Fibrosis

Zinc by itself is not effective. You also need the transporters. Read the Mt Sinai report for more information.

]]> c4c691f2cf1525e6c348a41d5a576f77 Chris lynch replied to the discussion Split Ofev doseages in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/split-ofev-doseages/#post-35323 Tue, 04 Jul 2023 17:50:49 -0500 Reply to Split Ofev doseages

Fran on OFEV for 2 months. No issues yet except the high cost. I am looking for an alternative to discuss with my Doc.

]]> 1262ba4ea6d04a1e21ec0ee418a7720b Chris lynch replied to the discussion How did you find you had fibrosis? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/how-did-you-find-you-had-fibrosis/#post-35322 Tue, 04 Jul 2023 17:39:44 -0500 Reply to How did you find you had fibrosis?

<p style=”text-align: left;”>By accident. Minor cough and X-ray by my GP.</p>

]]> 83dc959dca178e686223478331406518 Chris lynch: @sam123 Sam I was advised that I should have a […] https://pulmonaryfibrosisnews.com/forums/activity/p/39166/ Mon, 19 Jun 2023 16:11:16 -0500 @sam123 Sam I was advised that I should have a test
To measure my level of metals in my system. Once this is done I can move ahead with the Zinc and other components including the transporter elements etc Thanks

]]> 1 40fd9a0b21bed78086a22cec34845f7a Chris lynch posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/39078/#acomment-39094 Sun, 11 Jun 2023 19:34:02 -0500 Thanks

In reply to - Chris lynch to Sam123 @sam123 Sam are you taking any other drugs simultaneously. How did you determine dosage. Is your doctor on board? ]]> b0ffae8dfe6f1b5a8a76cab5b1d91fb9 Chris lynch replied to the discussion Sodium Pyruvate in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/sodium-pyruvate/#post-35204 Fri, 09 Jun 2023 21:36:04 -0500 Reply to Sodium Pyruvate

How and where were you an able to get the components? Thanks

]]> d4d2d580060944b81d85ab3164998e6d Chris lynch replied to the discussion Sodium Pyruvate in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/sodium-pyruvate/#post-35203 Fri, 09 Jun 2023 21:34:21 -0500 Reply to Sodium Pyruvate

Jose how were you able to get the components?

]]> 5717ed0f1eec708198427996b8244c8e Chris lynch: @sam123 Sam are you taking any other drugs […] https://pulmonaryfibrosisnews.com/forums/activity/p/39078/ Fri, 09 Jun 2023 19:51:37 -0500 @sam123 Sam are you taking any other drugs simultaneously. How did you determine dosage. Is your doctor on board?

]]> 2 a00fc43048f9202f9e6347038064d4b6 Chris lynch posted an update: Just finished reading 2 studies linking IPF to a lack […] https://pulmonaryfibrosisnews.com/forums/activity/p/39067/ Fri, 09 Jun 2023 01:07:35 -0500 Just finished reading 2 studies linking IPF to a lack of Zinc due to a lack of the transporter ZIP 8. One was done by
Cedars-Sinai the other by joint institutions in Australia. Same conclusion. What next??

]]> 0 0639b7c4c8560495e14b5ed855a0419c Chris lynch replied to the discussion Cost of Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/cost-of-ofev/#post-35180 Thu, 08 Jun 2023 14:25:10 -0500 Reply to Cost of Ofev

Short answer. If you have financial resources and /or a good income you’ll have to pay

]]> 9d1491f167f2b4039324ac9bde32a7e5 Chris lynch became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/38917/ Tue, 30 May 2023 14:22:32 -0500 0