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    • #32364
      Photo credit 

      I appreciate the members of this forum for a magnitude of reasons. One is being able to connect with everyone about what its truly like to live with this terrible lung condition, and another is because members are so willing to share their findings on things like: clinical trials, supplements to help manage symptoms and research that is being conducted for idiopathic pulmonary fibrosis (IPF).

      Recently, a member shared an article on Zinc and how it’s been found to play an important role in lung fibrosis. I wanted to share it as a post so those of you who might not have come across it yet can read it. Described as a common mineral in this article, it’s encouraging to hear that zinc may reverse lung damage and improve survival with IPF, according to investigators at Cedars-Sinai.

      Have you ever discussed the use of Zinc with your doctor regarding IPF? 

      Do you currently take Zinc supplements, and if so, are you noticing any difference in how you’re feeling? 

      This is a lead I’m curious to follow and hope more information is released regarding this!

    • #32377
      Christie Patient
      Moderator

      Fascinating! I know zinc is good for your immune system but this is the first I have heard of it in relation to lung health, fibrosis, etc. Definitely going to keep an eye on this as I am interested in the relationship of auto-immune coniditions and IPF.

      • #32407

        I agree @christie-patient… this article was super interesting to read, not something I’d heard of before, even though I knew of many of the other benefits.
        Char.

    • #32379
      john styles
      Participant

      Time to dust off my bottle of zinc. good article.

      • #32395
        Allan Byron
        Participant

        i will try to use the supplement, if it help it’s great. At this juncture bee are open to new therapies. What do we have to loss?

        Allan Byron

    • #32380
      Doug
      Participant

      Link to the article?

    • #32382
      Jeff Taylor-Jackson
      Participant

      I am going to take it straight away.

      I can also use it to stop my garden gate from rusting! 🙂

      Really interesting article and seriously; we need some good or encouraging news.

      Jeff in England.

    • #32387
      Tim Costar
      Participant

      Given the reputation of Cedars Sinai, authors of the report, I started taking zinc the moment I read the article a couple of weeks ago. My thinking was, it couldn’t do any harm so why not!

    • #32389
      Charles
      Participant

      ZINC huh! Very interesting. Has anyone talked to a doctor about it? I, like Tim, will start immediately. Does anyone know how much is too much as far as dosage is concerned? Charles “Chuck”

    • #32390
      John K. Grubb
      Participant

      Very interesting.  This article offers some hope if one takes zinc.  So I will go and get some zinc this afternoon.

      Another one to follow is the antibiotic Ambatrol (this is the trade name, not the generic).  Some researchers have found in mice taking the generic of Ambatrol results in a reversal of IPF.  This is an antibiotic  that is used to treat diarrhea and I think next time I see the doctor I will ask for a prescription.  It almost certainly would not hurt me and may help

    • #32393
      Millie
      Participant

      I have been taking 30mg of zinc on a daily basis. I have no idea if that dose is too high or too low. I recall reading somewhere that too much zinc can cause other problems and the 30mg was recommended. Does anyone know what the proper safe dose is? The article doesn’t mention that.

    • #32396
      Judy Fraser
      Participant

      I have been taking 30 mg of zinc for about a year. A doctor (not my lung doctor) advised me to take it to help my immune system So it’s on my list of medications that my lung doc sees, but he’s never commented on it.

      No idea if there’s any connection, but my recent CT scan showed no change from a year ago, which I regard as good news.

      BTW I was diagnosed in early 2019 and am not taking any anti-fibrotics.

      Judy

      • This reply was modified 5 days, 8 hours ago by Judy Fraser.
    • #32398
      Fay
      Participant

      Interesting! In March 2021 I had an exacerbation of PF and time in hospital. With Covid still around I decided on some supplements to build up my immune system. One of these was powdered Zinc 40mg with Vit C – directions were up to 3 months and label warnings for long term use so I hadn’t taken it over our Australian summer.

      My last 2 lung function tests in March and June 2022 were stable with an increase of lung volume. I had also been doing some lung volume breathing.

      Nothing scientific here but perhaps time to do another dose as it is the Australian winter. I am a PF survivor (so far) diagnosed in 2015.

       

    • #32401
      gil
      Participant

      Thank you for the informative article,  I will add a zinc supplement.

      Does anyone know if it is better to take it in liquid or pill form?

      • #32402
        Kevin collier
        Participant

        It is best to take your zinc with 4-5ounces of Tonic water the quinine in the tonic water helps the cells absorb the “large”zinc molecules.

      • #32429
        Raymond Petit
        Participant

        I never took a liquid form only a daily tablet

    • #32403
      Steve Dragoo
      Participant

      I started taking it again after this article butttt –

      Zinc is great when used properly not so when it is not.  For example, don’t use a nasal spray and definitely pay attention to the maximum dosage of less than 40 mg daily for men; less for women.  There are certain contraindications with other drugs too so please do your research.   I hope zinc helps and adding it again to the arsenal of supplements: serrapeptase, nattokinase, D3 and K2, alpha-lipoic acid, metformin, NAC B-complex berberine Omeprozoale, etc…

      Stay well…
      Steve

      • #32414
        Judy Fraser
        Participant

        Steve,

        Could you provide references/links for this info? I can’t find it.

        Thanks,

        Judy

        • #32416
          Steve Dragoo
          Participant

          Which info, Judy?

        • #32417
          Judy Fraser
          Participant

          Nasal spray, contraindications with other drugs, max dosages.

        • #32419
          Steve Dragoo
          Participant

          Look up zinc side effects and contraindications also search for side effects on zinc nasal spray. Good luck

      • #32430
        Raymond Petit
        Participant

        I’ve been taken 50 MG daily for several years no side effects so far

    • #32388
      Raymond Petit
      Participant

      Yes I believe in Zinc I’ve had IPF for over 10 years I’m 85 now my pulmonary doctor took me off Ofev Three years ago and every year my X-ray shows no more fibrosis growing no Oxygen my Ox level is 94 up to 98 I’m a big believer in Zinc

      • #32425
        Steve Dragoo
        Participant

        Hi Richard,

        What dosage are you taking daily?

        Thanks…
        Steve

    • #32410

      Thank you all for sharing your personal experience with Zinc, along with your opinions on the article… I found it very interesting as well! Similar to Chuck, I’m curious if anyone has brought this up with their doctor and obtained any feedback? It’s a credible article from a reputable site so hopefully a physician out there will read/listen to it. If you get any feedback from your doctor, please let us know.
      Take care,
      Char.

    • #32415
      Jeff Taylor-Jackson
      Participant

      Hi Charlene,

      I regularly bring articles of interesting research up with both my consultants, and with the Clinical team at the APF Charity (UK).

      Generally the response is “dont believe everything you read on the internet”.

      I get that, but I also get frustrated at the lack of interest in another line of research, if they are not following  that particular path. If I ask about the research they are doing, I get very enthusiastic responses.

      So I guess what I am sying is if they are interested in Zinc, it will go further, if not you are blown off.

      That said, I will definitely be bringing this up. I also went down to the chemists today and bought two bottles of Zinc and I have taken the first pill straight away.

      Why not?

      Regards

      Jeff

    • #32421
      Kitty
      Participant

      Hello Everyone,

      The recommended daily intake for zinc is 8 mg for women and 11 mg for men. The “tolerable upper limit” is 40 mg daily. These are provided by the Institute of Medicine for many nutrients. The recommended daily intakes are the levels needed to avoid overt disease while the upper limit is sometimes an educated guess .  Higher quantities are known to cause harm. For excellent and reliable information about nutrients you can go to the Linus Pauling Micronutrient Institute at Oregon State University. If I weren’t technically challenged I would provide the link but…..! Hoping this is useful.

      • #32424
        Steve Dragoo
        Participant

        Thanks Kitty – I saw the same info but add that that dosage is for generally healthy people. As a 73 year old male with other compromising factors, I am taking 40 mg daily but about an hour after other supplements.

        Stay well…
        Steve

      • #32428
        Millie
        Participant

        I’ve been looking at zinc/copper supplements.  What I’ve seen is 30mg of zinc combined with 2mg of copper and 50mg of zinc combined with 2mg of copper.   They say that zinc depletes copper so the combo is better.  Then I read somewhere that you are not supposed to take the two supplements together.  I’m confused.   Can someone straighten me out on this?

    • #32431
      Charles
      Participant

      Millie, you think that you are confused, read all of the above articles and you will find no two are alike. However, as Kitty has said, my GP doctor has also said that 11 mg is about correct for us men because of the possible side effects. So i not only questioned her, i also told her that most everyone on this site is taking 30/40 mg per day. So i asked her if the side effects are major or just something like an itch, calcium deposits or an ingrown toe nail. When she got back to me, she did say that there WERE NOT major problems. So she said to try the 30/40 mg and see if anything new starts growing on me. 🙂 So this morning i went to the local pharmacy and all they had was 50 mg. (I live in a very small town) So i bought them and took my first tablet this morning. The way i figure it was, that the worse thing that could happen is that i die. So what’s new!!! I am on my 9th year with this thing and have been taking OFEV for the last four years and now needing oxygen a lot more that a year ago. I am getting worse, but it is slower than the general articles say when i should croak. So that’s good, i think! Now this is what is so very interesting to me, is that i have heard nothing from any of you that your Pulmonologest has said about this subject, zinc. Me included. I do have an appointment with mine on Friday the 30 th of June and i intend to ask her all about ZINC. Report will follow. Oh no! i think that there is something new on my forehead. Oh wait. it’s just a fly. Good night. Charles “Chuck” Gerson

      • #32433
        Millie
        Participant

        Hi Charles—-I love your sense of humor.  Never lose it.  So, I’m waiting to hear back from you as to what you find out.  What is your take on the zinc/copper combo pill?

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