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Photo credit I appreciate the members of this forum for a magnitude of reasons. One is being able to connect with everyone about what its truly like to live with this terrible lung condition, and another is because members are so willing to share their findings on things like: clinical trials, supplements to help manage symptoms and research that is being conducted for idiopathic pulmonary fibrosis (IPF).
Recently, a member shared an article on Zinc and how it’s been found to play an important role in lung fibrosis. I wanted to share it as a post so those of you who might not have come across it yet can read it. Described as a common mineral in this article, it’s encouraging to hear that zinc may reverse lung damage and improve survival with IPF, according to investigators at Cedars-Sinai.
Have you ever discussed the use of Zinc with your doctor regarding IPF?
Do you currently take Zinc supplements, and if so, are you noticing any difference in how you’re feeling?
This is a lead I’m curious to follow and hope more information is released regarding this!
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Fascinating! I know zinc is good for your immune system but this is the first I have heard of it in relation to lung health, fibrosis, etc. Definitely going to keep an eye on this as I am interested in the relationship of auto-immune coniditions and IPF.
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I agree @christie-patient… this article was super interesting to read, not something I’d heard of before, even though I knew of many of the other benefits.
Char.
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Very interesting. This article offers some hope if one takes zinc. So I will go and get some zinc this afternoon.
Another one to follow is the antibiotic Ambatrol (this is the trade name, not the generic). Some researchers have found in mice taking the generic of Ambatrol results in a reversal of IPF. This is an antibiotic that is used to treat diarrhea and I think next time I see the doctor I will ask for a prescription. It almost certainly would not hurt me and may help
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I have been taking 30 mg of zinc for about a year. A doctor (not my lung doctor) advised me to take it to help my immune system So it’s on my list of medications that my lung doc sees, but he’s never commented on it.
No idea if there’s any connection, but my recent CT scan showed no change from a year ago, which I regard as good news.
BTW I was diagnosed in early 2019 and am not taking any anti-fibrotics.
Judy
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Interesting! In March 2021 I had an exacerbation of PF and time in hospital. With Covid still around I decided on some supplements to build up my immune system. One of these was powdered Zinc 40mg with Vit C – directions were up to 3 months and label warnings for long term use so I hadn’t taken it over our Australian summer.
My last 2 lung function tests in March and June 2022 were stable with an increase of lung volume. I had also been doing some lung volume breathing.
Nothing scientific here but perhaps time to do another dose as it is the Australian winter. I am a PF survivor (so far) diagnosed in 2015.
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Thank you for the informative article, I will add a zinc supplement.
Does anyone know if it is better to take it in liquid or pill form?
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I started taking it again after this article butttt –
Zinc is great when used properly not so when it is not. For example, don’t use a nasal spray and definitely pay attention to the maximum dosage of less than 40 mg daily for men; less for women. There are certain contraindications with other drugs too so please do your research. I hope zinc helps and adding it again to the arsenal of supplements: serrapeptase, nattokinase, D3 and K2, alpha-lipoic acid, metformin, NAC B-complex berberine Omeprozoale, etc…
Stay well…
Steve -
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Yes I believe in Zinc I’ve had IPF for over 10 years I’m 85 now my pulmonary doctor took me off Ofev Three years ago and every year my X-ray shows no more fibrosis growing no Oxygen my Ox level is 94 up to 98 I’m a big believer in Zinc
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Thank you all for sharing your personal experience with Zinc, along with your opinions on the article… I found it very interesting as well! Similar to Chuck, I’m curious if anyone has brought this up with their doctor and obtained any feedback? It’s a credible article from a reputable site so hopefully a physician out there will read/listen to it. If you get any feedback from your doctor, please let us know.
Take care,
Char. -
Hi Charlene,
I regularly bring articles of interesting research up with both my consultants, and with the Clinical team at the APF Charity (UK).
Generally the response is “dont believe everything you read on the internet”.
I get that, but I also get frustrated at the lack of interest in another line of research, if they are not following that particular path. If I ask about the research they are doing, I get very enthusiastic responses.
So I guess what I am sying is if they are interested in Zinc, it will go further, if not you are blown off.
That said, I will definitely be bringing this up. I also went down to the chemists today and bought two bottles of Zinc and I have taken the first pill straight away.
Why not?
Regards
Jeff
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Hello Everyone,
The recommended daily intake for zinc is 8 mg for women and 11 mg for men. The “tolerable upper limit” is 40 mg daily. These are provided by the Institute of Medicine for many nutrients. The recommended daily intakes are the levels needed to avoid overt disease while the upper limit is sometimes an educated guess . Higher quantities are known to cause harm. For excellent and reliable information about nutrients you can go to the Linus Pauling Micronutrient Institute at Oregon State University. If I weren’t technically challenged I would provide the link but…..! Hoping this is useful.
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I’ve been looking at zinc/copper supplements. What I’ve seen is 30mg of zinc combined with 2mg of copper and 50mg of zinc combined with 2mg of copper. They say that zinc depletes copper so the combo is better. Then I read somewhere that you are not supposed to take the two supplements together. I’m confused. Can someone straighten me out on this?
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Millie, you think that you are confused, read all of the above articles and you will find no two are alike. However, as Kitty has said, my GP doctor has also said that 11 mg is about correct for us men because of the possible side effects. So i not only questioned her, i also told her that most everyone on this site is taking 30/40 mg per day. So i asked her if the side effects are major or just something like an itch, calcium deposits or an ingrown toe nail. When she got back to me, she did say that there WERE NOT major problems. So she said to try the 30/40 mg and see if anything new starts growing on me. 🙂 So this morning i went to the local pharmacy and all they had was 50 mg. (I live in a very small town) So i bought them and took my first tablet this morning. The way i figure it was, that the worse thing that could happen is that i die. So what’s new!!! I am on my 9th year with this thing and have been taking OFEV for the last four years and now needing oxygen a lot more that a year ago. I am getting worse, but it is slower than the general articles say when i should croak. So that’s good, i think! Now this is what is so very interesting to me, is that i have heard nothing from any of you that your Pulmonologest has said about this subject, zinc. Me included. I do have an appointment with mine on Friday the 30 th of June and i intend to ask her all about ZINC. Report will follow. Oh no! i think that there is something new on my forehead. Oh wait. it’s just a fly. Good night. Charles “Chuck” Gerson
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