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Fay replied to the topic Household Chores & IPF! in the forum Diagnosis Information and General Questions 3 months ago
PF – 7 years diagnosis. At my worst, I would use my office chair and wheel my way through our one level house to vacuum. Now that we’ve downsized I’m in a 2 story town house and have a vacuum on each floor, cleaning caddy for upstairs & downstairs. As my hubby has Dementia we have a weekly cleaner in now for vacuuming and steam mopping. They, als…[Read more]
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Fay replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 7 months, 1 week ago
Hi from Australia- reassuring to hear your comments on a third vaccine dose. I had a Rituximab treatment in May/June 2021 and had to wait 3 months before the vaccine dose. To prepare for Rituximab I went off Tacrilimus completely and Immuran for 2 weeks after. I also take a maintenance dose of Prednisone.
Having second dose of vax tomorrow and my…[Read more]
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Fay replied to the topic Do others with IPF cough for 20 minutes every morning? in the forum Living with Pulmonary Fibrosis: 50+ 8 months ago
<p style=”text-align: center;”>It was with a collective sigh of commiseration when reading your stories about ‘the cough’. I was diagnosed with PF in 2015. It was only this year after an exacerbation requiring hospital that I developed the cough. I had read that PF cough was dry but as you all described it is wet and productive. Mine is wors…[Read more]
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Fay replied to the topic Dupuytren's and Raynauds with IPF in the forum Living with Pulmonary Fibrosis: 50+ 9 months, 1 week ago
<p style=”text-align: left;”>Polymyositis and Pulmonary Fibrosis here. Raynaud’s symptoms as well – White tips at end of fingers, tingling and sometimes sore. I hold my hands in very warm water.</p>
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Fay replied to the topic CTD-ILD; Sjorgren's Syndrome, polymyositis; Antisynthetase syndrome in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months ago
Hi Marisa – I do share some diagnosis with you. I was diagnosed with the ILD – IPF in late 2014. In early 2015 a second opinion and further tests indicated that I actually had Polymyositis first that resulted in Pulmonary Fibrosis. It was a shock to receive such a life changing diagnosis.
I live in Australia so at my age a lung transfer is not an…[Read more]
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Fay replied to the topic Auto Immune in the forum Using Our Forums 11 months ago
Hi Everyone – thanks for your stories. I was diagnosed in 2014 initially IPF but after further testing and an array of other symptoms in 2015 re-diagnosis to Autoimmune Polymyositis causing PF. Medications to dampen the autoimmune system included IVig, Tacrolimus, Azathioprine & Prednisilone. Earlier, this year I was hospitalised with an onset of…[Read more]
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Fay became a registered member 1 year ago
Welcome to the PF forums Fay, we are glad you found us 🙂