Biography

Name

Fay

Nickname

fay

Year of Birth

1950

Gender

Female

Location

Australia

Relationship

Patient

Short Bio

Diagnosed with Polymyositis in 2015 with resulting ILD – Pulmonary Fibrosis. 6 years post diagnosis had my first hospitalisation and a deterioration in the PF scarring.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Private Rheumatologist, Private Lung Physician,

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

Be diligent in uptake of medication

Regular exercise- if possible

Positive attitude

Keel up with blood tests and appointments

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

6 years

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