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Tim Costar replied to the topic How are long-term (4+ years) OFEV users doing? in the forum Ofev (Nintedanib) 2 months ago
I was 4 years in January. Started originally on 150 but after 9 months of uncontrollable diarrhea was scaled back to 100. Everything was stable until my last PFT/6MNTW last November when my stats fell off significantly. This resulted from a fall in August where I fractured 5ribs so the hope was things would be back to normal after a few months.…[Read more]
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Tim Costar replied to the topic Deep-breathing exercises in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 1 week ago
Which exercises are you doing. I’m doing a couple that require machines e.g. holding a plastic ball in a clear plastic cylinder for as long as you can. Also do chest stretching exercises but interested in as many options as I can find.
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Tim Costar replied to the topic Spotlight on the Immunosuppressed.. Finally. in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago
I am 5years since original IPF diagnosis and over4 years on Ofev. No one has ever implied that I am immuno suppressed but I guess that is lack of communication. Fortunately, at 80 years of age, I have been high in the pecking order for each round of vaccines and now completed to third dose. Supposedly 4th shot is coming soon (in Canada) and…[Read more]
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Tim Costar posted a new activity comment 4 months, 1 week ago
Have been following from the outside and have seen a lot of very useful information in forums. Hope to contribute
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Tim Costar became a registered member 4 months, 1 week ago
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Welcome to the PF forums Tim, thanks for joining us!
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Have been following from the outside and have seen a lot of very useful information in forums. Hope to contribute
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Looking forward to it. This community is rich with everyone’s contributions, and we only increase its value by adding new points of view 🙂
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Looking forward to it. This community is rich with everyone’s contributions, and we only increase its value by adding new points of view 🙂