Tim Costar

Just a heads up…..Nov 1, UK will be on Standard time. North America doesn’t ‘fall back’ until the following weekend.

My provider was completely ‘up front’ with me on the difference between my poc and the continuous flow I have (but don’t really need) for at home use. I was prescribed 2 lpm for exertion but he set the poc at 3. Rationale was that most of the O2delivery on continuous flow is wasted, you only need what 2lpm delivers in each minute for the perio…[Read more]

Did she say why?

Given the reputation of Cedars Sinai, authors of the report, I started taking zinc the moment I read the article a couple of weeks ago. My thinking was, it couldn’t do any harm so why not!

I was 4 years in January. Started originally on 150 but after 9 months of uncontrollable diarrhea was scaled back to 100. Everything was stable until my last PFT/6MNTW last November when my stats fell off significantly. This resulted from a fall in August where I fractured 5ribs so the hope was things would be back to normal after a few months.…[Read more]

Which exercises are you doing. I’m doing a couple that require machines e.g. holding a plastic ball in a clear plastic cylinder for as long as you can. Also do chest stretching exercises but interested in as many options as I can find.

I am 5years since original IPF diagnosis and over4 years on Ofev. No one has ever implied that I am immuno suppressed but I guess that is lack of communication. Fortunately, at 80 years of age, I have been high in the pecking order for each round of vaccines and now completed to third dose. Supposedly 4th shot is coming soon (in Canada) and…[Read more]