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Tim Costar

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@timcostar

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    Tim Costar replied to the topic REMAP-ILD in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 5 months ago

    Just a heads up…..Nov 1, UK will be on Standard time. North America doesn’t ‘fall back’ until the following weekend.

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    Tim Costar replied to the topic Relative LPM on pulse oxygen concentrators in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months ago

    My provider was completely ‘up front’ with me on the difference between my poc and the continuous flow I have (but don’t really need) for at home use. I was prescribed 2 lpm for exertion but he set the poc at 3. Rationale was that most of the O2delivery on continuous flow is wasted, you only need what 2lpm delivers in each minute for the perio…[Read more]

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    Tim Costar replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 9 months ago

    Did she say why?

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    Tim Costar replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 9 months, 1 week ago

    Given the reputation of Cedars Sinai, authors of the report, I started taking zinc the moment I read the article a couple of weeks ago. My thinking was, it couldn’t do any harm so why not!

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    Tim Costar replied to the topic How are long-term (4+ years) OFEV users doing? in the forum Ofev (Nintedanib) 1 year ago

    I was 4 years in January. Started originally on 150 but after 9 months of uncontrollable diarrhea was scaled back to 100. Everything was stable until my last PFT/6MNTW last November when my stats fell off significantly. This resulted from a fall in August where I fractured 5ribs so the hope was things would be back to normal after a few months.…[Read more]

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    Tim Costar replied to the topic Deep-breathing exercises in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year ago

    Which exercises are you doing. I’m doing a couple that require machines e.g. holding a plastic ball in a clear plastic cylinder for as long as you can. Also do chest stretching exercises but interested in as many options as I can find.

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    Tim Costar replied to the topic Spotlight on the Immunosuppressed.. Finally. in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 2 months ago

    I am 5years since original IPF diagnosis and over4 years on Ofev. No one has ever implied that I am immuno suppressed but I guess that is lack of communication. Fortunately, at 80 years of age, I have been high in the pecking order for each round of vaccines and now completed to third dose. Supposedly 4th shot is coming soon (in Canada) and…[Read more]

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    Tim Costar posted a new activity comment 1 year, 2 months ago

    Have been following from the outside and have seen a lot of very useful information in forums. Hope to contribute

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    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 2 months ago

      Looking forward to it. This community is rich with everyone’s contributions, and we only increase its value by adding new points of view 🙂

  • Profile picture of Tim Costar

    Tim Costar became a registered member 1 year, 2 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 2 months ago

      Welcome to the PF forums Tim, thanks for joining us!

    • Profile picture of Tim Costar
      Tim Costar replied 1 year, 2 months ago

      Have been following from the outside and have seen a lot of very useful information in forums. Hope to contribute

      • Profile picture of Christie Patient
        Christie Patient replied 1 year, 2 months ago

        Looking forward to it. This community is rich with everyone’s contributions, and we only increase its value by adding new points of view 🙂

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