Tim Costar

Name

Tim Costar

Year of Birth

1941

Gender

Male

Location

Pickering, Ontario, Canada

Relationship

Patient

Short Bio

Diagnosed almost 5 years ago. Approved for Ofev by government 9 months later. Started at 150 but reduced to 100 after about another 9 months. Was stable up until last November. Bad fall at end of August resulted in 5 broken ribs and my Pulmonary Function Tests in November were way below historical levels. In Ontario, if you decline by more than 10% in a a year they say the drug isn’t working for you and stop the funding so that is my next battle. Decline had nothing to do with Ofev efficacy and everything to do with difficulty breathing with 5 broken ribs! Have a reprieve until next testing (May) but still not fully recovered from effects of fall. Fingers crossed!!

Type of Diagnosis

IPF

Treatment / Medical Facility

Sinai Health, Toronto

Current medication regimen

Only Ofev (plus immodium for controlling side effects) for IPF.

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

Exercise and Pulmonary rehab

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

5 years

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