Jeff Taylor-Jackson

Hi Cheryl,

Yes I have the “clear my throat” problem. It is annoying and is commented on by my co-workers.

Obviously no idea why this was happening in the past. I do have the clues now though!

Kind regards

Jeff in England.

Hi all,

I was diagnosed with IPF April 2021. So this is still new to me.

Like has been mentioned above, There is a possible link to Acid Reflux being the trigger for the ILD/IPF.

My consulant has noticed from my CT scan that I have an Hiatial Hernia, these are known to cause acid reflux.

On the nasal congestion, I now have this every morning.…[Read more]

Hi Herb C..

I am hoping you pass those last two tests.

Surely after all you have been through so far you will be accepted.

Please come back and let us all know.

I am in the UK, so I hope I might get a positive result on this. (Not applied yet, not ill enough apparently).

Kind regards

Jeff

Hi All,

Truly sorry to hear that you have had Covid AND now have PF.

I have recently been diagnosed with IPF, I have not had Covid however. One thing I have found since the diagnosis is the lack of awareness about the disease and the lack of funding for research.

I’m not saying there isn’t any, I’m just pointing out that Cancer sufferers have…[Read more]

Hi Mark,

Where in the world are you?

You mention indigestion. This could be Acid Reflux and there is a possible link between Acid reflux and IPF.

There are lots of resource around and many kind souls on this forum will offer advice and reassurance.

I am 61, and have recently been diagnosed with IPF.

Kind regards

Jeff (Poole UK)

Hi Joe,

You are right, there is a “Very small” study being carried out at Kings, they are looking into using the patients own white blood cells to treat lung scarring from covid infection.

https://www.bbc.co.uk/news/av/uk-57837432

You may not be able to see this in the US, as it’s the BBC website.

I have mentioned this at my APF group and many…[Read more]

Watch out the Cookie Monster is about!

Hi Bernard,
I too am 61 years old and in England. I have just been diagnosed in April 2021 and I am at the start of a bunch of tests to try and work out how progressive this stupid IPF is.
I had been trying to get to the bottom of the constant cough and breathlessness since December last year, with Covid and all, my GP either did not answer the…[Read more]