Phil Ryan

I sent a message asking about it to my pulmonary physician severaladays ago and have yet to hear back from her? Frustrating…

I note that Noah’s new book seems to have no problem discussing yoga and meditation.  So why the concern about religion is still beyond me.  On another note, I missed any discussion on healthful procedures on supplemental oxygen.  When I received by first concentrator, the delivery person made no mention that (1) the intake areas should be cl…[Read more]

Surprisingly, I have never had any mental health issues as a result of IPF.  Since I’m in the last years of my life at 76, I may have had more difficulty with it if I were younger.  We’re all mortal, even though some don’t seem willing to accept that.  IPF just gave me more clarity about how much longer I have.  That means, get your affairs in ord…[Read more]

I’m 76 and have been diagnosed with IPF and pulmonary hypertension at least two years ago.  I live in San Francisco and have participated in a pulmonary therapy session twice a week for an hour at St Francis hospital.  It was the best thing I could have done at the time.  It was run by two trained pulmonary nurses, although one was pretty much pu…[Read more]

I just ordered a now monthly supply and the pharmacist of the UCSF specialty pharmacy mentioned that the generic will be out very shortly.

I’ve been diagnosed with IPF and Pulmonary Hypertension for at least the last two years.  I also have a thick mucus cough, with usually must pronounced after my doses of Esbriet and Tyvaso.  Never did have a dry cough.

It’s interesting to hear from the folks in Reno area.  I live in San Francisco and have been on supplemental oxygen for over a year.  My sister lives in Carson City (elevation about 5,000′) and when I last visited her (pre-Covid) and drove over the Sierras I really felt the difference in breathing.   A couple days in Carson City and I was more tha…[Read more]

I’m fortunate to be under the care of Drs at UCSF, the major medical provider in San Francisco, with a national A+ reputation.  I have three doctors: my PCP who specialized in Geriatrics (I’m 76), one for IPF and one for Pulmonary Hypertension.  I will have to say that my PCP is perhaps the best I’ve had in my life.   During my initial meeting wit…[Read more]

When I first got my non-portable concentrator, I was also bothered by the noise (it was on a wood floor).  Since then I have moved to a carpeted apartment and the noise is not now an issue.  I still hear it, but it’s more “white noise.”  So, as someone previously suggested to me, buy a small carpet to put your concentrator on, and the noise may be…[Read more]

I have UnitedHealthcare and Medicare coverage, and my Dr had no problem getting approval (his staff highly recommended Esbriet).  I did have monthly liver checks since my liver was already somewhat compromised because of my drinking, but there was no side effects noted because of my taking of Esbriet.  I get it through the UCSF specialty p…[Read more]

I have both PAH and IPF and am on Esbriet and Tyvaso.  Both for a little over 2 years. I have no material side affects, and both seem to be slowing the deterioration; however, my supplemental oxygen needs seem to be climbing steadily.  I take 12 puffs of Tyvaso per session.  I will underline that Tyvaso is extremely expensive although luckily my…[Read more]