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J L LaBrack replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 month ago
Kim–
Thank you for the ray of hope! Really glad to hear that this is working for you! I’m 79+, male and 5 yrs. into IPF. Have been taking 30 mg. zinc picolinate daily for 6+ months based on a Cedars Sinai study posted on this site. Still have a 95-96% resting sat. rate with no Esbriet nor Ofev, and no oxygen. As many here have said: “What do…[Read more] -
J L LaBrack replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 2 months, 2 weeks ago
Hi–
Compiling data sounds like a good idea! The pros don’t seem very motivated to expedite new treatments–or better yet, a cure! I’m sure there are some really good pulmonologists out there, but I’ve yet to find one–even Mass General Brigham was no help. Every medical school has someone who graduates last in their class every year, and…[Read more] -
J L LaBrack replied to the topic Hiatus Hernia in the forum Diagnosis Information and General Questions 2 months, 4 weeks ago
Very sorry to hear of your diagnosis. I believe that that type of hernia is called “hiatal hernia.” Noone should have to endure that on top of this horrible IPF. With the amount of coughing that we do, it’s no wonder we tear something open, though. Only way I see is to try to minimize the cough–easier said than done… Surgery is probably…[Read more]
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J L LaBrack replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 5 months ago
Raymond,
Your story is a real inspiration! I’m a 79-year-old male and got my bad news in May 2018, so now in my 5th year. Started taking zinc a couple months ago (15 mg. in a.m. and again in p.m.) with no decline so far. I’ve refused Esbriet and Ofev because of huge $ and awful side effects. The fact that you were taken off Ofev 3 years ago…[Read more]
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J L LaBrack replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 5 months ago
Not long after I posted this, I increased my intake to 2 capsules of zinc picolinate per day–one right after breakfast and the other right after dinner. My resting sat. rate remains at 95-96%, but a flight of stairs drops it down to @88% if I rush. This is pretty much where I was before starting the zinc, but I just ordered another 180 c…[Read more]
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J L LaBrack replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 5 months, 1 week ago
I’m in my fifth year (diagnosed in May 2018) and I guess I’m lucky to the extent that as a 79-year-old male, I’m too old for transplant(s) and not yet on oxygen. The quantity vs. quality-of-life issue mentioned here is a prime concern for me, and I’ve made a decision to not start either Ofev or Esbriet for two reasons. The first is the e…[Read more]
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J L LaBrack replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 6 months, 4 weeks ago
gill–
From what I’ve read, not all forms of zinc are equal. Capsule seems to be preferred over liquid and the form most completely metabolized is zinc picolinate. The optimal dosage seems to 30 mg./day for men and somewhat less for women. Also overdosing should be avoided according to most sites, as it has negative effects. I’m getting the im…[Read more]
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J L LaBrack replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 7 months ago
Pauline–
Please double check your daily dosage. 50 mg./day has been widely stated as too much, especially for a woman. Under 30 mg. should be max from what I’ve read.
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Richard D.Gueard and
J L LaBrack are now friends 7 months ago
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J L LaBrack replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 7 months ago
This is great information. I wasn’t able to locate a local source for the form I wanted but ordered online and have started taking it! After a bit of research, it appears that not all zinc forms are equal. Zinc picolinate is the form that is reported to be the most completely metabolized. Hence, I’m taking one 15 mg. capsule daily. Too soon…[Read more]
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J L LaBrack posted an update 7 months, 2 weeks ago
This article on zinc gives me a bit of hope–I’m in my 5th year since diagnosis. Still hitting @95% on oximeter. Did some research on zinc and found that the compound in which zinc is found is important for optimum metabolizing. That is zinc picolinate. It’s important to not take too much, so have started with one 11 mg. pill/day. May be…[Read more]
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J L LaBrack posted a new activity comment 1 year, 1 month ago
Thanks, Christie, I appreciate all that you do to keep us informed! Too many pulmonologists (mine included) don’t have much training (all foreigners) on how to treat this affliction beyond Ofev or Espriet. All mine does is order more tests to monitor the advance. He’s all in for asthma, COPD, or cancer, though…
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J L LaBrack replied to the topic When will first treatment to repair scar tissue become available to humans in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 1 month ago
I’m dealing with IPF and have been 3.5 years with no hope of getting an effective treatment, let alone a cure. This news is a double-edged sword. On one hand, it gives all of us IPFers hope for effective treatment and possible cure, but doubtful that we’ll see the day when the possible cure will be available–due to the massive bureaucratic s…[Read more]
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J L LaBrack became a registered member 1 year, 2 months ago
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Welcome to the PF forums JL, thanks for joining us!
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Thanks, Christie, I appreciate all that you do to keep us informed! Too many pulmonologists (mine included) don’t have much training (all foreigners) on how to treat this affliction beyond Ofev or Espriet. All mine does is order more tests to monitor the advance. He’s all in for asthma, COPD, or cancer, though…
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