Patricia Meadows

Hi Allan.  Such a pity that something you enjoy (singing) plus something that we need in our everyday life (speaking) is affected so much.  I took a short course in voice acting a few years ago.  The instructor said that eating a Granny Smith (or probably any) apply seemed to help people avoid clearing their throat or coughing.  Just a piece of…[Read more]

Doug, just click on the words in blue in Charlene’s post (“important role in lung fibrosis”) and it will take you to the article.

– Patricia

Our support group asked the organizer to have someone come in to speak to us about what it is like to die from PF.  We were fortunate to have the head of palliative care in our province (Alberta) address us.  It was one of the best-attended meetings we’ve ever had.  Despite the fact that talking about death is difficult and uncomfortable for ma…[Read more]

I would have replied sooner but just now saw your post. When I was first diagnosed with PF my nostrils were over half full of dry scabs which only added to the stress of finding it hard to breathe. My doctor sent me to a wound clinic where the nurse said (off the record) that I could pick off the scabs, then smear Vaseline in my nostrils.…[Read more]

Congratulations, Christie! I’ve let my fitness slip since COVID hit. Prior to that, I’d been going to the gym 5 to 6 times per week for over 27 years.

My small win was not having any wine or beer for three days this past week. I’m not a heavy drinker, but usually have a glass of wine with lunch or dinner every day, or a beer when it’s warm.…[Read more]

For the Canadians like me in the crowd, here’s a link:

https://www.canada.ca/en/public-health/services/diseases/coronavirus-disease-covid-19.html

Stay well, everyone, and Merry Christmas!

Patricia

Hi Ron.

Funny you mentioned scrapes and cuts becoming infected.  I haven’t had any infections, BUT I’ve found that wounds heal much more slowly in the last seven years, including the last three since I’ve been off all meds.

I love dairy products.  In addition to drinking lots of milk, eating cheese (and taking a calcium supplement while I was o…[Read more]

Immediately upon diagnosis of PF from an as-yet-unidentified autoimmune disease in April, 2013 I was put on 50mg/day.  I read the information sheet and when I saw that weight gain is a typical side-effect, I decided to pay strict attention to what I ate.  “Mindful” eating really helped me.  If I was out for a meal I would eat half of what was on…[Read more]