@christie-patient
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Christie replied to the topic IPF without cough in the forum Join the Discussion: Welcome to all PF/IPF Patients 15 hours, 44 minutes ago
@mahzie Christine, I am so sorry to hear it’s been such an ordeal to get into the doc’s office and get your prescription renewed. I agree, criminal. Especially with all of the accommodations people were (suddenly, magically) able to make during the height of COVID, like e-visits. I hope those accommodations last into the future and are improved…[Read more]
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Christie replied to the topic Has anyone tried Stem Cell therapy? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 day, 16 hours ago
@6yearvet @lnour It is a forum policy to treat all forum members with respect. We can have disagreements and discourse without being unkind to one another. If you wish to continue this conversation, keep that in mind.
And another note, everyone can and should be doing their own research about treatments and trials, and should take everything in…[Read more]
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Christie posted a new activity comment 4 days, 15 hours ago
Welcome to the PF forums Sheila, we’re happy you found us.
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Christie posted a new activity comment 4 days, 15 hours ago
Welcome to the PF forums Dave, we’re happy you found us.
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Christie posted a new activity comment 4 days, 15 hours ago
Welcome to the PF forums Stefanie, we’re happy you found us.
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Christie posted a new activity comment 5 days, 17 hours ago
Welcome to the PF forums Rebecca, we’re happy you found us.
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Christie posted a new activity comment 5 days, 17 hours ago
Welcome to the PF forums Jim, we’re happy you found us.
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Christie posted a new activity comment 5 days, 17 hours ago
Welcome to the PF forums Carroll, we’re happy you found us.
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Christie posted a new activity comment 5 days, 17 hours ago
Welcome to the PF forums Pierre, we’re happy you found us.
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Christie replied to the topic Allowing Hope Into Tough Days in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week ago
@tamierni, Indeed. PF takes so much from us. I only know from a caregiver’s point of view, but I saw how painful the sacrifices–“simple” activities–were for my mom. I feel for you. Are there any small goals that you set for yourself or routines that you practice that make you feel hopeful and joyful?
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Christie replied to the topic Metastatic breast cancer with ipf diagnosis. Ipf diagnosed after the chemo in the forum Diagnosis Information and General Questions 1 week ago
Hi Tamara @tamierni, I am so sorry to hear that you got a double whammy diagnosis. It’s simply not fair. I hope this forum can be of some help and comfort.
I’m not sure quite what you’re asking in your last paragraph… are you trying to get the breast cancer surgeons to do something for your PF? Or refer you to get another opinion from a…[Read more]
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Christie posted a new activity comment 1 week ago
There is a whole subforum devoted to OFEV! Tons of helpful information there, including how to deal with unpleasant side effects, dosage information, etc. You can also use the search bar on the right of the page to look for specific keywords. Let me know if you need help using the forums 🙂
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Christie posted a new activity comment 1 week ago
Welcome to the PF forums Linda, thanks for joining us!
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Christie posted a new activity comment 1 week ago
Welcome to the PF forums Margaret, thanks for joining us!
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Christie posted a new activity comment 1 week ago
Welcome to the PF forums Mirhashem, thanks for joining us!
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Christie posted a new activity comment 1 week ago
Welcome to the PF forums Carroll, thanks for joining us!
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Thank you and Have a great day
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Welcome to the PF forums Carroll, we’re happy you found us.
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Christie posted a new activity comment 1 week ago
Welcome to the PF forums Jeffrey, thanks for joining us!
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Christie posted a new activity comment 1 week ago
Welcome to the PF forums Jeffrey, thanks for joining us!
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Christie posted a new activity comment 1 week, 1 day ago
You are in the right place. Though IPF can have many causes (or no known cause) there are others here with documented agent orange exposure. You can start a thread to discuss this, or use the search bar on the right of the page to find posts that include those keywords 🙂 Let me now if you need help using the forums.
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Christie posted a new activity comment 1 week, 1 day ago
Welcome to the PF forums John, thanks for joining us!
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Thank you Christie. I look forward to reading everyone’s input on this journey I’ve been put on. Of the few I have read, they have helped already for the Ofev pill I soon will be on. Thanks to everyone contributing their stories.
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There is a whole subforum devoted to OFEV! Tons of helpful information there, including how to deal with unpleasant side effects, dosage information, etc. You can also use the search bar on the right of the page to look for specific keywords. Let me know if you need help using the forums 🙂
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Thank you ~