Mary Frances

MAUDE is something you can check in with

Have doctor increase your 2 liters of oxygen There are also other cannulas to use for continuous flow. For IPF they also have a full face masks. The doc may do walking and breathing test for you to see if you need your oxygen increased.

Asking for prayers for my mother Emily. She was diagnosed in 2018. We are not sure when she actually got this disease. We have called in hospice & today being Easter had no care until 5:00. I called at 8 am eastern time. My mother gasped for air since 4 am night before. I’m messaging this to all so hopefully this helps other patients prepare for e…[Read more]

My mother Emily was diagnosed in 2018 with IPF. We had here on bp meds and started her on 10 mg of prednisone. It worked wonders. Then they wanted her to try Tyveso and Ofev. She cannot tolerate the Ofev and stopped. I read Ofev takes 6- 12 weeks to really get inside of her body. At the 6 week mark they added Tyveso and inhaler 4 times a day. She…[Read more]

Hello my Emily (my brave sweet mother) She has just joined I am praying for all of you. We must share our experiences to help others🙏 You are right Pete everyone is different and needs to be monitored closely We had such a scare

Praying for you My mom has the powder form 4 times a day On day 9 her bp was 200/100 we were calling an ambulance Had to stop the Tyveso & Ofev because she couldn’t stop throwing up the next two days. Made two trips by ambulance over the last 3 days. Her bp is finally coming down and staying at 140/90 What a horrible experience No side effects m…[Read more]