Adele Friedman

I can do pool exercise without oxygen.  More water aerobics type workout than swimming per se, but go for over a half hour at a time.  I am not fully dependent on oxygen, but it helps.  Currently doing Noah Greenspan’s PR video program and at about the time the walk exceeded 7 minutes, I decided I needed some oxygen while walking.  One thing I’v…[Read more]

My mother had some type of PF and she also had allergic bronchopulmonary aspergillosis.  I’m told it’s likely she had PF and the aspergillosis was an opportunistic fungal infection.  I had a ton of bloodwork done and was found to have ILD/PF as a result of Sjogren’s Syndrome.  I believe my mother may have had that too.  She had several sym…[Read more]

It is your right to talk when you’re ready. I know people mean well, but the notion of “getting well” doesn’t apply to so many diseases. It is hard when you’re first diagnosed.

We had gotten kittens about a month and a half before I was diagnosed.  I was glad for them, and yes, we have plans for who will take them when we can’t care for them.

I also take alendronate and have since before diagnosis, no problems before or since.  I take mycophenolate and Symbicort (much happier with this than nebulizers).  I have lost weight, but it’s been deliberate, via lower carb eating, trying to keep it to around 100 g. a day.  I’ve noticed on the Facebook pages that many seem to have been ov…[Read more]