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Adele Friedman

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@adele

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    Adele Friedman replied to the topic Exercising off oxygen? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 5 days ago

    I can do pool exercise without oxygen.  More water aerobics type workout than swimming per se, but go for over a half hour at a time.  I am not fully dependent on oxygen, but it helps.  Currently doing Noah Greenspan’s PR video program and at about the time the walk exceeded 7 minutes, I decided I needed some oxygen while walking.  One thing I’v…[Read more]

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    Adele Friedman replied to the topic Is ipf genetic? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 5 days ago

    My mother had some type of PF and she also had allergic bronchopulmonary aspergillosis.  I’m told it’s likely she had PF and the aspergillosis was an opportunistic fungal infection.  I had a ton of bloodwork done and was found to have ILD/PF as a result of Sjogren’s Syndrome.  I believe my mother may have had that too.  She had several sym…[Read more]

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    Adele Friedman replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 5 days ago

    It is your right to talk when you’re ready. I know people mean well, but the notion of “getting well” doesn’t apply to so many diseases. It is hard when you’re first diagnosed.

    We had gotten kittens about a month and a half before I was diagnosed.  I was glad for them, and yes, we have plans for who will take them when we can’t care for them.

     

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    Adele Friedman replied to the topic Why do IPF patients lose weight and how to help in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 weeks, 5 days ago

    I also take alendronate and have since before diagnosis, no problems before or since.  I take mycophenolate and Symbicort (much happier with this than nebulizers).  I have lost weight, but it’s been deliberate, via lower carb eating, trying to keep it to around 100 g. a day.  I’ve noticed on the Facebook pages that many seem to have been ov…[Read more]

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    Adele Friedman posted a new activity comment 2 weeks, 5 days ago

    Thank you, Christie.

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  • Profile picture of Adele Friedman

    Adele Friedman posted a new activity comment 2 weeks, 5 days ago

    Thank you

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  • Profile picture of Adele Friedman

    Adele Friedman became a registered member 1 month, 3 weeks ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 month, 3 weeks ago

      Welcome to the PF forums Adele, we’re glad you found us.

      • Profile picture of Adele Friedman
        Adele Friedman replied 2 weeks, 5 days ago

        Thank you

  • Profile picture of Adele Friedman

    Adele Friedman became a registered member 1 month, 3 weeks ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 month, 3 weeks ago

      Welcome to the PF forums Adele, we’re glad you found us.

    • Profile picture of Adele Friedman
      Adele Friedman replied 2 weeks, 5 days ago

      Thank you, Christie.

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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