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Adele Friedman replied to the topic Exercising off oxygen? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 5 days ago
I can do pool exercise without oxygen. More water aerobics type workout than swimming per se, but go for over a half hour at a time. I am not fully dependent on oxygen, but it helps. Currently doing Noah Greenspan’s PR video program and at about the time the walk exceeded 7 minutes, I decided I needed some oxygen while walking. One thing I’v…[Read more]
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Adele Friedman replied to the topic Is ipf genetic? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 5 days ago
My mother had some type of PF and she also had allergic bronchopulmonary aspergillosis. I’m told it’s likely she had PF and the aspergillosis was an opportunistic fungal infection. I had a ton of bloodwork done and was found to have ILD/PF as a result of Sjogren’s Syndrome. I believe my mother may have had that too. She had several sym…[Read more]
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Adele Friedman replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 5 days ago
It is your right to talk when you’re ready. I know people mean well, but the notion of “getting well” doesn’t apply to so many diseases. It is hard when you’re first diagnosed.
We had gotten kittens about a month and a half before I was diagnosed. I was glad for them, and yes, we have plans for who will take them when we can’t care for them.
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Adele Friedman replied to the topic Why do IPF patients lose weight and how to help in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 weeks, 5 days ago
I also take alendronate and have since before diagnosis, no problems before or since. I take mycophenolate and Symbicort (much happier with this than nebulizers). I have lost weight, but it’s been deliberate, via lower carb eating, trying to keep it to around 100 g. a day. I’ve noticed on the Facebook pages that many seem to have been ov…[Read more]
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Adele Friedman posted a new activity comment 2 weeks, 5 days ago
Thank you, Christie.
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Adele Friedman posted a new activity comment 2 weeks, 5 days ago
Thank you
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Adele Friedman became a registered member 1 month, 3 weeks ago
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Adele Friedman became a registered member 1 month, 3 weeks ago
Welcome to the PF forums Adele, we’re glad you found us.
Thank you