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David Morgan

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@daleem1013

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  • Profile picture of David Morgan

    David Morgan posted a new activity comment 5 months, 1 week ago

    I am however learning, for me, that balancing my research requires balance ( emotionally, spiritually, so I don’t get lost in a rabbit hole of nothing but this but also living everyday life. Trying to at best without getting too lost in the forest for the trees. It’s a tight rope of support, education, emotions and keeping joy. I hope to find a…[Read more]

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    • Profile picture of Christie Patient
      Christie Patient replied 5 months, 1 week ago

      Absolutely understand that. I didn’t do any research when my mom was diagnosed. I just wanted to know what she and her doctors had to say and nothing else for the internet because it freaked me out. Eventually, I found peer support to be very helpful but there is definitely a balance of how much we can/should read when we are processing these…[Read more]

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    David Morgan posted a new activity comment 5 months, 1 week ago

    Thank you Christie, as I hear mire from my next appointment I will share more and also research the columns of yours and Sam’s as you’ve suggested. I appreciate your time and consideration.

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    David Morgan posted a new activity comment 5 months, 1 week ago

    Thanks for the encouragement. The gauntlet of esophagrams, more HRCTs ECHOs, etc.. continue as my chief pulmonologist has informed me that they are listing me for an LTx so I’m certain that I will have plenty of more questions as this whole ordeal seems like a blur at times and yet I feel enthusiastic to see all the why’s and how’s I’m supposed to…[Read more]

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    • Profile picture of Christie Patient
      Christie Patient replied 5 months, 1 week ago

      There’s a bunch of resources for approaching and navigating the transplant process on our site. Myself and Sam Kirton write columns on the subject–he as a patient and me as a caregiver. Feel free to reach out anytime if you need support. It can be pretty overwhelming.

      • Profile picture of David Morgan
        David Morgan replied 5 months, 1 week ago

        Thank you Christie, as I hear mire from my next appointment I will share more and also research the columns of yours and Sam’s as you’ve suggested. I appreciate your time and consideration.

      • Profile picture of David Morgan
        David Morgan replied 5 months, 1 week ago

        I am however learning, for me, that balancing my research requires balance ( emotionally, spiritually, so I don’t get lost in a rabbit hole of nothing but this but also living everyday life. Trying to at best without getting too lost in the forest for the trees. It’s a tight rope of support, education, emotions and keeping joy. I hope to find a…[Read more]

        • Profile picture of Christie Patient
          Christie Patient replied 5 months, 1 week ago

          Absolutely understand that. I didn’t do any research when my mom was diagnosed. I just wanted to know what she and her doctors had to say and nothing else for the internet because it freaked me out. Eventually, I found peer support to be very helpful but there is definitely a balance of how much we can/should read when we are processing these…[Read more]

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    David Morgan joined the group Group logo of Research and DevelopmentResearch and Development 5 months, 1 week ago

  • Profile picture of David Morgan

    David Morgan replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 3 weeks ago

    I am 50 y/0 and the thoughts of my parents ( 70’s) and daughter ( Sr. Highschool) about my diagnosis haunt me more than my ultimate destination.  I feel like I have so much unfinished business so sharing with them and imparting the reality at this time is beyond words although I try my best to be diligent and a good steward of information for…[Read more]

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    David Morgan and Profile picture of Christie PatientChristie Patient are now friends 6 months, 3 weeks ago

  • Profile picture of David Morgan

    David Morgan posted a new activity comment 6 months, 3 weeks ago

    Thank you, after being ” recently ” diagnosed 1st HRCT 3 mis back and 1million it seems auto- immune labs all negative ( bitter sweet) now being put into OFEV protocol though I understand it can take a bit to finally get 1st dose, I’m actually beginning to grasp and process the diagnosis and looking for people who can relate and maybe just share…[Read more]

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    • Profile picture of Christie Patient
      Christie Patient replied 6 months, 3 weeks ago

      I am sorry to hear your diagnosis journey has been a bit of a rodeo.. that is not uncommon sadly. But on the bright side, you have just found a big community of people to commiserate with! Feel free to post in the forums and see who you meet. There is a whole forum just for OFEV topics if you need more info about it. Let me know if you need help…[Read more]

  • Profile picture of David Morgan

    David Morgan became a registered member 6 months, 4 weeks ago

    • Profile picture of Christie Patient
      Christie Patient replied 6 months, 3 weeks ago

      Welcome to the PF forums David, we’re glad you found us.

      • Profile picture of David Morgan
        David Morgan replied 6 months, 3 weeks ago

        Thank you, after being ” recently ” diagnosed 1st HRCT 3 mis back and 1million it seems auto- immune labs all negative ( bitter sweet) now being put into OFEV protocol though I understand it can take a bit to finally get 1st dose, I’m actually beginning to grasp and process the diagnosis and looking for people who can relate and maybe just share…[Read more]

        • Profile picture of Christie Patient
          Christie Patient replied 6 months, 3 weeks ago

          I am sorry to hear your diagnosis journey has been a bit of a rodeo.. that is not uncommon sadly. But on the bright side, you have just found a big community of people to commiserate with! Feel free to post in the forums and see who you meet. There is a whole forum just for OFEV topics if you need more info about it. Let me know if you need help…[Read more]

    • Profile picture of David Morgan
      David Morgan replied 5 months, 1 week ago

      Thanks for the encouragement. The gauntlet of esophagrams, more HRCTs ECHOs, etc.. continue as my chief pulmonologist has informed me that they are listing me for an LTx so I’m certain that I will have plenty of more questions as this whole ordeal seems like a blur at times and yet I feel enthusiastic to see all the why’s and how’s I’m supposed to…[Read more]

      • Profile picture of Christie Patient
        Christie Patient replied 5 months, 1 week ago

        There’s a bunch of resources for approaching and navigating the transplant process on our site. Myself and Sam Kirton write columns on the subject–he as a patient and me as a caregiver. Feel free to reach out anytime if you need support. It can be pretty overwhelming.

        • Profile picture of David Morgan
          David Morgan replied 5 months, 1 week ago

          Thank you Christie, as I hear mire from my next appointment I will share more and also research the columns of yours and Sam’s as you’ve suggested. I appreciate your time and consideration.

        • Profile picture of David Morgan
          David Morgan replied 5 months, 1 week ago

          I am however learning, for me, that balancing my research requires balance ( emotionally, spiritually, so I don’t get lost in a rabbit hole of nothing but this but also living everyday life. Trying to at best without getting too lost in the forest for the trees. It’s a tight rope of support, education, emotions and keeping joy. I hope to find a…[Read more]

          • Profile picture of Christie Patient
            Christie Patient replied 5 months, 1 week ago

            Absolutely understand that. I didn’t do any research when my mom was diagnosed. I just wanted to know what she and her doctors had to say and nothing else for the internet because it freaked me out. Eventually, I found peer support to be very helpful but there is definitely a balance of how much we can/should read when we are processing these…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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