Pulmonary Fibrosis News Forums | Frank Marzetta | Activity https://pulmonaryfibrosisnews.com/forums/members/fmarzetta/activity/ Activity feed for Frank Marzetta. Tue, 21 Apr 2026 13:38:44 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 30b3e5704e81239b1cb63aaa4d761b62 Frank Marzetta posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/38228/#acomment-38229 Thu, 06 Apr 2023 20:43:08 -0500 I need to do that for sure. I’m still working and need the income and have not made the effort to go to rehab. Thanks for the reminder that it can help.

In reply to - Michelle Johnson posted an update @fmarzetta I was told pulmonary rehabilitation can help you learn to breath properly with pulmonary fibrosis and strengthen your diaphragm with exercises it’s sappossed to help […] ]]> 6ef1d5bc37f095c568a8903dee794783 Frank Marzetta replied to the discussion Shortness of breath and how to catch it in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/shortness-of-breath-and-how-to-catch-it/#post-34839 Thu, 06 Apr 2023 16:41:18 -0500 Reply to Shortness of breath and how to catch it

BTW…I am on 2L continuous flow oxygen.

]]> 2d964853b46970b0e1f414e126e56e63 Frank Marzetta started the discussion Shortness of breath and how to catch it in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/shortness-of-breath-and-how-to-catch-it/ Thu, 06 Apr 2023 15:54:45 -0500 Shortness of breath and how to catch it

Hi All,

I have been experiencing extreme SOB.  I try to breathe through my nose and out my mouth to get the oxygen flowing but find I am so SOB that I can only breathe very rapidly through my mouth.   I can only move slowly and need to take a lot of breaks, but am not getting the benefit of the oxygen because of the mouth breathing and my O2… Read more

]]> f3de4de482bc196b63f694e6e51ecb92 Frank Marzetta replied to the discussion Using supplemental oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/using-supplemental-oxygen/#post-34720 Fri, 24 Mar 2023 16:47:30 -0500 Reply to Using supplemental oxygen

For now, I’ve decided to use smaller tanks with a backpack and get used to carrying oxygen.  Maybe I’ll graduate to a POC but want to walk before I run!

]]> 09c5390b0d20ddbe24fe21309feab8f1 Frank Marzetta replied to the discussion Using supplemental oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/using-supplemental-oxygen/#post-34648 Thu, 16 Mar 2023 21:23:45 -0500 Reply to Using supplemental oxygen

Hi Merideth, I wasn’t saying I didn’t need it, just was asking if the POC’s would help.  I do need it and would like to use a POC instead of a tank.  I’m pretty new to the diagnosis and trying to figure out how to take best care of myself.

]]> 029254038602b9377e1af16b3e8b88ac Frank Marzetta replied to the discussion Using supplemental oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/using-supplemental-oxygen/#post-34635 Wed, 15 Mar 2023 17:35:30 -0500 Reply to Using supplemental oxygen

Thanks for the replies!  I’m seeing my Dr. next week and will bring up the points all of you have made.

]]> f2437012781ddf56bf92a114bc1309da Frank Marzetta replied to the discussion Using supplemental oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/using-supplemental-oxygen/#post-34596 Fri, 10 Mar 2023 22:26:50 -0600 Reply to Using supplemental oxygen

Perfect…Thank you!

]]> a2c8ecefcde4676587c356ca388dd0f9 Frank Marzetta replied to the discussion Using supplemental oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/using-supplemental-oxygen/#post-34590 Fri, 10 Mar 2023 18:20:30 -0600 Reply to Using supplemental oxygen

Thanks Sam…I think most of the shoulder – carried POC’s are pulse.  Is there a big difference between pulse and continuous?  I’ve been looking at the Inogen G5. If a recommendation could be made on a shoulder – carried POC it would be appreciated.

]]> 0307ca75ef0901637954df623e166797 Frank Marzetta started the discussion Using supplemental oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/using-supplemental-oxygen/ Thu, 09 Mar 2023 20:05:58 -0600 Using supplemental oxygen

My Dr. wants me on 2L continuous oxygen all the time.  If I exert myself, like going to the grocery store, I have to rest a few times and catch my breath, but am not using supplemental oxygen.  When I check my 02 levels they are in the low 70’s, sometimes in the 60’s.   In your experience using oxygen, does it get you to a healthy 02 level(89… Read more

]]> 0a27a6e1582162a0fa9c41d5dc866823 Frank Marzetta became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/37297/ Mon, 06 Feb 2023 15:00:58 -0600 1