Michelle Johnson

I have been told that at the end you basically go to sleep you gat tired from the lack of oxygen and are not very hungry and they have medication that can make you comfortable at least I hope that is how it will happen and that’s what my pulmonologist told me anyway so I hope this is real and not suffering in the end like a fish out of water

I have severe pain in my knees also it’s been going on about a year is this linked to IPF or taking Ofev it would be interesting to know if they are correlated if any one has any information I would like to know what they are saying about it thanks Michelle

Hello I would like to know if it is important to stay within a specific room temperature for people with pulmonary fibrosis my electric company will give a 16 hours per day at tier one cost if you need to keep your Residence at a specific temperature or if you have health issues and need to operate your medical oxygen machine or any other medical…[Read more]

Tustin California I go to UCI Douglas hospital and the doctors there are really great they take really good care of me thanks Michelle I’m not in a Support group

I have a hiatal hernia and gerd I take omeprazole it really helps me I won’t have the surgery don’t want to be intubated I’m afraid the tube won’t come back out but maybe your hernia is worse than mine

I was Dx in 2018 I had gotten pneumonia and had a chest X-ray and a Ct that’s when they recommended I see a pulmonologist and get a lung Bx it told me I had pulmonary fibrosis no one ever told me that from onset that the average life span is three to six years of a life span that’s the average some people live longer some shorter I’m now on oxyge…[Read more]

I was Dx in 2018 I had gotten pneumonia and had a chest X-ray and a Ct that’s when they recommended I see a pulmonologist and get a lung Bx it told me I had pulmonary fibrosis no one ever told me that from onset that the average life span is three to six years of a life span that’s the average some people live longer some shorter I’m now on oxyge…[Read more]

I have to take 100 two x day because of my bad GI tract don’t think I could go back to the higher dose it also makes me throw up any one else throw up from this OFEV I Was Dx in 2018 in 51 now I was told I have one to two years left before I go getting ready for the transplant experience soon my first appointment is after the holidays