Pulmonary Fibrosis News Forums | Sue Steele | Activity https://pulmonaryfibrosisnews.com/forums/members/irises28icloud-com/activity/ Activity feed for Sue Steele. Sun, 26 Apr 2026 04:24:56 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 7d60c0e4b1ceef3d9ff7a4a4ecf729de Sue Steele replied to the discussion Ipf or not in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/ipf-or-not/#post-30135 Wed, 06 Oct 2021 02:24:00 -0500 Reply to Ipf or not

I had pneumonia last February 2020. While in the hospital had a cat scan. Pf was found. Since then I had broody done. No cancer,everything  normal. I was put on 40 mg prednisone a day. I have been taking it for five months. That’s all that was done. Dr. Wants me to go on cellcept. I must come off prednisone. I use 1.5 oxygen to sleep. I put… Read more

]]> 7ba2adfbdcc6d3795d83a821da4e685c Sue Steele posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/29541/#acomment-29908 Wed, 06 Oct 2021 00:42:59 -0500 I am so thankful I see people that have what I have. So very thankful for all of you. Please keep it he stories coming to me.

In reply to - Sue Steele became a registered member ]]> 7619aec78a76b24967e31ed8cb827152 Sue Steele replied to the discussion What Do You Wish You'd Known When You Were Diagnosed with PF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/what-do-you-wish-youd-known-when-you-were-diagnosed-with-pf/#post-30072 Mon, 27 Sep 2021 19:04:17 -0500 Reply to What Do You Wish You'd Known When You Were Diagnosed with PF?

What’s LEF?
I walk a treadmill each day. I’m on oxygen all the time also. My Dr. said I can adjust the oxygen level so that is over 90 on the finger oximeter. I put the level on number 3 and a half. I walk for 45 min.
regards,

sue

]]> 6fda4c05097be1a28669f8cbac3a4ee9 Sue Steele replied to the discussion Low dose of Esbriet, is it worthwhile? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/low-dose-of-esbriet-is-it-worthwhile/#post-30044 Sun, 26 Sep 2021 14:17:17 -0500 Reply to Low dose of Esbriet, is it worthwhile?

My Dr. wants to put me incekkcept. I don’t know why? I have not had a transplant. I PF not IPF. Does anyone use that drug? The side effects are really bad or so I read. I’m not sure what I should do. I’m on oxygen but it’s set at 2. I have been told I have pf.

]]> 797d2b1b86c865501a3bc02c2334b798 Sue Steele joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/29743/ Sat, 25 Sep 2021 16:33:58 -0500 0 d2c79137faa20689d0e52e7765ab969a Sue Steele replied to the discussion What Do You Wish You'd Known When You Were Diagnosed with PF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/what-do-you-wish-youd-known-when-you-were-diagnosed-with-pf/#post-30043 Sat, 25 Sep 2021 15:32:28 -0500 Reply to What Do You Wish You'd Known When You Were Diagnosed with PF?

I wish I knew I had it earlier z I could have taken the medication that slows it down.

]]> cb6e7b62daada4b21031eeec16676f90 Sue Steele became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/29541/ Mon, 13 Sep 2021 15:06:20 -0500 2