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Sue Steele

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@irises28icloud-com

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    Sue Steele replied to the topic Ipf or not in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 5 months ago

    I had pneumonia last February 2020. While in the hospital had a cat scan. Pf was found. Since then I had broody done. No cancer,everything  normal. I was put on 40 mg prednisone a day. I have been taking it for five months. That’s all that was done. Dr. Wants me to go on cellcept. I must come off prednisone. I use 1.5 oxygen to sleep. I put ox…[Read more]

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    Sue Steele posted a new activity comment 1 year, 5 months ago

    I am so thankful I see people that have what I have. So very thankful for all of you. Please keep it he stories coming to me.

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    Sue Steele replied to the topic What Do You Wish You'd Known When You Were Diagnosed with PF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 6 months ago

    What’s LEF?
    I walk a treadmill each day. I’m on oxygen all the time also. My Dr. said I can adjust the oxygen level so that is over 90 on the finger oximeter. I put the level on number 3 and a half. I walk for 45 min.
    regards,

    sue

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    Sue Steele replied to the topic Low dose of Esbriet, is it worthwhile? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 6 months ago

    My Dr. wants to put me incekkcept. I don’t know why? I have not had a transplant. I PF not IPF. Does anyone use that drug? The side effects are really bad or so I read. I’m not sure what I should do. I’m on oxygen but it’s set at 2. I have been told I have pf.

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    Sue Steele joined the group Group logo of Research and DevelopmentResearch and Development 1 year, 6 months ago

  • Profile picture of Sue Steele

    Sue Steele replied to the topic What Do You Wish You'd Known When You Were Diagnosed with PF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 6 months ago

    I wish I knew I had it earlier z I could have taken the medication that slows it down.

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    Sue Steele became a registered member 1 year, 6 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 6 months ago

      Welcome to the PF forums Sue! Thanks for joining us 🙂

    • Profile picture of Sue Steele
      Sue Steele replied 1 year, 5 months ago

      I am so thankful I see people that have what I have. So very thankful for all of you. Please keep it he stories coming to me.

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