Pulmonary Fibrosis News Forums | Joseph Collins | Activity https://pulmonaryfibrosisnews.com/forums/members/josephcollins/activity/ Activity feed for Joseph Collins. Fri, 17 Apr 2026 00:05:55 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 c3c93cd720140cee334a6ff27ef0747c Joseph Collins replied to the discussion Decreasing DLCO……..40-35 %in a month in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/decreasing-dlco-40-35-in-a-month/#post-33604 Fri, 18 Nov 2022 02:06:47 -0600 Reply to Decreasing DLCO……..40-35 %in a month

Hi Peggy it is not unusual for the numbers to vary from one PFT to the next. I was diagnosed in early 2014 and have accumulated 14 readings between then and 2022. Here is the DLCO readings I have had over that time. Hope they will be helpful.                                                            11/14~42. 5/15~39. 11/16~36.… Read more

]]> 5cebd5c5bb1e5ea82d5505632491f2ef Joseph Collins posted an update: I have completed 19 laser treatments so far the last 4 […] https://pulmonaryfibrosisnews.com/forums/activity/p/14758/ Sun, 25 Aug 2019 22:17:45 -0500 I have completed 19 laser treatments so far the last 4 using the new protocol. Although my last DLCO was 26 I found, today, that I could, while at rest, maintain 96% O2 while BREATHING THROUGH MY NOSE! I still have stamina problems but I think that is due to my cardiac problem not my lung problem. I am slowly getting back to my normal… Read more

]]> 0 4a5d3d634bf8fd74126d638b643b71be Joseph Collins posted an update: @drandyhall https://pulmonaryfibrosisnews.com/forums/activity/p/14735/ Sat, 24 Aug 2019 22:35:56 -0500 @drandyhall

]]> 0 3ab242befcb7b422319a814d6812470d Joseph Collins replied to the discussion Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/laser-therapy-results/#post-20767 Thu, 08 Aug 2019 22:08:44 -0500 Reply to Laser Therapy Results

For those that may be interested below are the results of all the PFT’s I have had since I was diagnosed. I tried to post it as a spread sheet but can’t seem to get it right so you will need to adapt as I did. Below each date is four stacked numbers. These represent FVC, FEV1, TLC and DLCO. Not the way that I had hoped but the info is there if… Read more

]]> 561a6f4db0911612f692343f1f1d4027 Joseph Collins replied to the discussion Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/laser-therapy-results/#post-20762 Thu, 08 Aug 2019 19:13:22 -0500 Reply to Laser Therapy Results

Piet and Leontis, when I was diagnosed the Ofev trial was still ongoing. My pulmonologist asked if I would be interested in joining it. After he told me how rough the side effects were and how expensive it would’ve once approved I opted not to get involved. I refused all medications until 4/17/2018 when it appeared that the disease was on the… Read more

]]> 08b91538cbe0238589b952ca3c9f5edc Joseph Collins replied to the discussion Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/laser-therapy-results/#post-20731 Wed, 07 Aug 2019 16:10:13 -0500 Reply to Laser Therapy Results

Yesterday, 8/6/19, I had a PFT at my pulmonologist’s office. This was exactly 5 months since my last one, (3/6/19), and the first since I have been receiving laser therapy.

 

MY MARCH READINGS WERE,       FEC/FEV1/TLC/DLCO = 37/45/61/21

MY AUGUST READINGS WERE,     FEC/FEV1/TLC/DLCO =. 43/51/52/26

“The pulmonologist comment was that I was… Read more

]]> c1dee46cb6985b3a14ccaf3e013ff71b Joseph Collins joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/14240/ Tue, 06 Aug 2019 20:48:22 -0500 0 1b8b43f71edb6df33ab7c19606aa8d70 Joseph Collins replied to the discussion Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/laser-therapy-results/#post-20667 Mon, 05 Aug 2019 21:30:45 -0500 Reply to Laser Therapy Results

@drandyhall Andy, in the first paragraph Of your personal story it states that you were diagnosed in 2004. I believe that to be in error. Please verify date as I was diagnosed in May of 2014 and thought my IPF was paralleling yours.

Regards,

Joe Collins

]]> b5583a371647e7bac69fa9a797133d77 Joseph Collins posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/14028/#acomment-14045 Sun, 28 Jul 2019 18:32:12 -0500 Hi Mark and thanks for the welcome. I have been browsing the site trying to decide where and when to post. The most amazing thing is that my symptoms are quite different from most of the ones here. I have been diagnosed for over 5 years and still have a resting O2 concentration in the mid 90s. I have never taken anything other than 20 mg… Read more

In reply to - Joseph Collins posted an update I am an 85 yo maie, new to this forum, but an old hand at IPF. I was diagnosed with it in May of 2014. I was offered a chance to join the Ofev trials but opted not to do so as I […] ]]> 34c56815768859f6aa8eb4e319d3254e Joseph Collins replied to the discussion Perks To Using Supplemental Oxygen in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/perks-using-supplemental-oxygen/#post-20538 Sun, 28 Jul 2019 16:47:39 -0500 Reply to Perks To Using Supplemental Oxygen

When first prescribed supplemental oxygen I was hesitant to use it in public. My pulmonologist casually mentioned that he had seen me put on glasses when I need to see something clearly so why should I not go to oxygen when I needed to breath? Nuff said!

]]> f6abe88ed9011bf541415981be85b6bd Joseph Collins posted an update: I am an 85 yo maie, new to this forum, but an old hand […] https://pulmonaryfibrosisnews.com/forums/activity/p/14028/ Sat, 27 Jul 2019 20:13:06 -0500 I am an 85 yo maie, new to this forum, but an old hand at IPF. I was diagnosed with it in May of 2014. I was offered a chance to join the Ofev trials but opted not to do so as I was told that the side effects were bad and the pricing would be worse. For the first three years my digression was less than in the study group. My pulmonologist… Read more

]]> 3 ce4afd4305606e89a4c40e72d069e832 Joseph Collins became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/14016/ Sat, 27 Jul 2019 01:56:36 -0500 1