I am a long time quilter who went into overdrive when I retired. I love how quilting gives me an artistic outlet, especially colors. I especially like doing hand work like English Paper Piecing and hand quilting. I find them so meditative. It is a great way to forget your troubles.

I have great fears about these cutbacks on my health. Not only may Social Security and Medicare be gutted, but I also fear that research funding will dry up. I also want to fight back for my future.

I was diagnosed with Interstitial Lung Disease linked to schleroderma about 2.5 years ago. It was caught early and I was put on Mycophenolate immediately to control my body’s over active immune response. My disease has remained stable during that period. I use 2 liters of O2 with my cpap at night but do not need it during the day unless I am…

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I have used over the counter Mucinex and Robitussin DM with dextromethorphan to control cough for many years. I used them on my kids when they were sick. After reading about this research, I decided to use Mucinex DM on a daily basis. I have tolerated both very well to thin mucus and control cough over a long period. Hopefully daily use…

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I was diagnosed with ILD about 2 and a half years ago. Luckily I was diagnosed fairly early. I immediately asked for pulmonary therapy. It was wonderful for me both physically and emotionally. My periodic testing showed that my benchmarks improved. When I started I was suffering from the initial gut punch of receiving the diagnosis. I…

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I have traveled with the Phillips Respironics Simply Go machine. I need a machine that can do both continuous and pulse oxygen. It is large enough that I need to use the included cart. I need to use it at night with my cpap and while at altitude in the airplane. I was lucky and had electrical outlets that worked so I did not have to…

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I am taking 1500 mg daily. Two 500 tabs in morning and one 500 tab at evening. I tried 4 but felt very fatigued. Since my inflammation was in the normal range my doctor let me take the 1500. I have not had any problems catching viruses or colds.

My best recommendations are use smart watch technology. I realized that I had low oxygenation because of my smart watch. Go to the best pulmonologist you can find at a lung center if possible. Get proper testing, treatment, and go for as much pulmonary therapy as you can get. It really helps. Getting the diagnosis is an tough emotional…

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I was diagnosed with interstitial lung disease caused by schleroderma one year and a half ago. I started mycophenolate immediately. I am not on a real strong dose so as not to suppress my immune system too much, but my lungs look better and my inflammation is down. I tolerate it very well. I only use 2 liters of oxygen at night with my cpap…

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