Pulmonary Fibrosis News Forums | Kay Kagy | Activity https://pulmonaryfibrosisnews.com/forums/members/kay-kagy/activity/ Activity feed for Kay Kagy. Fri, 17 Apr 2026 13:51:55 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 9d8420369946231119636480c59ea2e3 Kay Kagy posted an update: I followed thr protocol from the pharmacist with Ofev […] https://pulmonaryfibrosisnews.com/forums/activity/p/20088/ Thu, 14 May 2020 22:16:09 -0500 I followed thr protocol from the pharmacist with Ofev for the ECGC green tea tx and was very impressed with her having not only the article but also the ECGC ingredient for the tea. Even though I has 98% Extracy of Green Tea in each capsule of 500 mg. she calculated that I would need 2 capsules to meet the testing requirements. She also… Read more

]]> 0 36dafca8c310fc817fc72c28a7a7eb9b Kay Kagy replied to the discussion EGCG Green Tea Extract in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/egcg-green-tea-extract/#post-24228 Sun, 03 May 2020 17:25:29 -0500 Reply to EGCG Green Tea Extract

Hi, I started the green Tea with EGCG yesterday after a great discussion with the pharmacist from the Ofev site.  I have been on Ofev for 2 years now.  So-she was so thorough in her response.  First-no drug interactions with Ofev, next-she had the article and the study and said it was important if I was going to do it to match the amount of… Read more

]]> 1eaa2c0872f83b61b59d8fac77dcd0f3 Kay Kagy posted an update: @charlene-marshall Hi, hoping you are having fun […] https://pulmonaryfibrosisnews.com/forums/activity/p/16182/ Mon, 11 Nov 2019 20:06:27 -0600 @charlene-marshall Hi, hoping you are having fun and enjoying the conference in Texas. My question to you is regarding the new orphan drug, Nitric Oxide.for IPF. As it is now on a Cohart 2 and headed for Cohort 3 I would like to know how to find out where the studies are being held and can I find that study anywhere. As my clinic is now… Read more

]]> 2 34ea966e34bde63fce0cb4f7ec44a0d0 Kay Kagy posted an update: Hi, well after a 2 month break in Laser 4 and a […] https://pulmonaryfibrosisnews.com/forums/activity/p/13914/ Tue, 23 Jul 2019 16:04:56 -0500 Hi, well after a 2 month break in Laser 4 and a downward slipping have gone back to them. Obviously there is no proof that was the reason but ??? As my latest PFT’s this month not the issue but my 6mwt bombed! So- walking other than minimal around the house or to car etc. without 02 knocks level into the toilet. I have been on Ofev for… Read more

]]> 0 12e7801864e71b52972d2647f77d793e Kay Kagy posted an update: Hi tried to read the exercise with IPF site but says it […] https://pulmonaryfibrosisnews.com/forums/activity/p/13590/ Mon, 08 Jul 2019 03:30:23 -0500 Hi tried to read the exercise with IPF site but says it has been deleted?? Sounded interesting. Can you check on your posts and see wht might be the issue? Thanks Kay

]]> 0 cefb01242d189f1933f572c398bb6e23 Kay Kagy posted an update: Tomorrow is my 7th Laser 4 treatment. As a former nurse […] https://pulmonaryfibrosisnews.com/forums/activity/p/9838/ Tue, 05 Mar 2019 17:41:44 -0600 Tomorrow is my 7th Laser 4 treatment. As a former nurse I run skeptic of “alternative treatments” As a 77 year old IPF patient I at least investigate a possibility. Ofev is limited in it’s success with me but I faithfully take it even though side effects are sometimes daunting. It was on your site reading about Laser 4 from some of the… Read more

]]> 1 dfac939540db630c00c3f3e68955b920 Kay Kagy posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/8961/#acomment-9174 Wed, 20 Feb 2019 01:36:25 -0600 Hi, it was super. The chiropractor, Dr. Brignec, is exceptional. Has already taken the time to speak with Dr. Hall and followup conversation will be with the doctor after the second full week of treatment. He is doing some of his own research, his wife is an oncologist and very interested in the treatment as well. So-time will tell. I… Read more

In reply to - Kay Kagy posted an update Oops, forgot to mention he wanted to know how to connect to Inspire as he is getting so many requests for chiropractors from people on that site. So, I gave him the web address. He […] ]]> 21150b60ef9e4953cb7a84a65afc9656 Kay Kagy posted an update: Oops, forgot to mention he wanted to know how to connect […] https://pulmonaryfibrosisnews.com/forums/activity/p/8961/ Thu, 14 Feb 2019 18:22:09 -0600 Oops, forgot to mention he wanted to know how to connect to Inspire as he is getting so many requests for chiropractors from people on that site. So, I gave him the web address. He said he was backlogged over 27 requests for chiropractic referrals and driving him crazy as he can’t use his computer until lines fixed! So, he apologized and… Read more

]]> 2 e72a79aa4c869937d93a17b4b1ed1f93 Kay Kagy posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/8960/ Thu, 14 Feb 2019 18:14:31 -0600 Hi, this doctor of course knew nothing of the usage for lung disease but said it made sense to him. I took him info about the site, Dr. Hall and contact info. Dr. Hall had also sent me his treatment protocol which I shared with the new doc and he said he was going to try and contact him by phone as he was very interested. No hesitancy at all… Read more

]]> 1 ba61dbd94bf16e9806493ed1281982ee Kay Kagy posted an update: Hi, just got an email from Dr. Hall of Laser 4 study. […] https://pulmonaryfibrosisnews.com/forums/activity/p/8959/ Thu, 14 Feb 2019 18:09:50 -0600 Hi, just got an email from Dr. Hall of Laser 4 study. He wanted me to tell the group that ATT internet is down due to wind and severe storms. He has been told may be a week before up and running. So, he has over 27 requests for referrals to chiropractors which he can’t get to yet. High frustration! He wanted to know how to connect to… Read more

]]> 0 6f4c6310eb6c9c833569b015d3693d72 Kay Kagy posted an update: Hi, I start my laser 4 treatments tomorrow. Hopeful but […] https://pulmonaryfibrosisnews.com/forums/activity/p/8888/ Wed, 13 Feb 2019 18:24:00 -0600 Hi, I start my laser 4 treatments tomorrow. Hopeful but as a former nurse also cautious. I sent an email to my pulmologist explaining reason I have decided not to do the Galapagos clinical trials and opting for this laser treatment. Main reason for not the clinical trials is minimum time period is 2 years to find out if on a placebo or… Read more

]]> 1 ac18b7e22a38e1c4fbee15185cd2d6ce Kay Kagy posted an update: Hi. Extremely interested in the laser 4 […] https://pulmonaryfibrosisnews.com/forums/activity/p/8380/ Sat, 02 Feb 2019 18:20:10 -0600 Hi. Extremely interested in the laser 4 potential treatment. I am looking on line for the contact info for Dr. Hall so that I can locate a chiropractor or PT near me and also sign up for the clinical trial that he is working on. Maybe I missed the contact info. Could someone please send it? Thanks, Kay

]]> 0 6a891928224a0002159a971030c20bf4 Kay Kagy became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/7134/ Sat, 08 Dec 2018 12:06:40 -0600 1 8cfb9171c1909fa08c6f0df0120e8400 Kay Kagy updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/7131/ Sat, 08 Dec 2018 04:30:29 -0600 0