Pulmonary Fibrosis News Forums | kenf | Activity https://pulmonaryfibrosisnews.com/forums/members/kenf/activity/ Activity feed for kenf. Fri, 17 Apr 2026 21:25:11 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 6c332a3d826fd92ef0a739032a1455d7 kenf replied to the discussion Jascayd and Ofev in the forum Jascayd (nerandomilast) https://pulmonaryfibrosisnews.com/forums/forums/topic/jascayd-and-ofev/#post-39110 Sun, 21 Dec 2025 15:47:42 -0600 Reply to Jascayd and Ofev

Anyone try Ofev, Jascdys andTyvaso all at the same time?

]]> d78b23224e4420a3afad3237d88ccc13 kenf replied to the discussion How to stay active with PF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/stay-active-pf/#post-38777 Wed, 27 Aug 2025 10:32:47 -0500 Reply to How to stay active with PF

Hi John,

Could you describe your daily breathing routine in a post?

Thx

Ken

]]> ad32974ae6b736b4692ac706e7d6e3c1 kenf replied to the discussion New in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/new/#post-38491 Tue, 10 Jun 2025 19:53:32 -0500 Reply to New

I tried to edit my reply to include short of breath..

I agree with other replies.

Talk to your doctor. .

]]> c426c3e396fef5594d7c35998d87c08b kenf replied to the discussion New in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/new/#post-38488 Tue, 10 Jun 2025 19:07:40 -0500 Reply to New

What is SOB.?

Sad or boisterous and mean ?

]]> 5d9a4ad86329a4a4736891a64c135aea kenf replied to the discussion Thoughts on AI and PF in the forum Navigating Society https://pulmonaryfibrosisnews.com/forums/forums/topic/thoughts-on-ai-and-pf/#post-38357 Sat, 17 May 2025 11:15:13 -0500 Reply to Thoughts on AI and PF

Hi, I use the free version platform Perplexity and I recommend it.

I asked “Perplexity” to describe itself..here’s the answer:

“Perplexity is an advanced AI-powered search and answer platform. It combines the latest artificial intelligence models with real-time internet searches to help users quickly find accurate, well-sourced answers to any question.”

]]> 17a697e0b83e6ee510379c16b7f5e47f kenf replied to the discussion Let's talk about clinical trials in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/lets-talk-about-clinical-trials/#post-38287 Sat, 03 May 2025 10:43:11 -0500 Reply to Let's talk about clinical trials

Hi Jeff. What is name of the drug that was the trial you were in?

It sounded promising and I wish you well!

I live in the states and would like to search out a trial for whatever drug helped you..

Have a great day out there!

]]> 10ca68793fa3c8da41fefdde815ab5f9 kenf replied to the discussion Rituxan in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/rituxan/#post-37826 Fri, 10 Jan 2025 20:43:48 -0600 Reply to Rituxan

I just asked ChatGPT about Rixuxan, here is the answer I got..

Rituxan (rituximab) is not specifically approved for idiopathic pulmonary fibrosis (IPF), and its safety in this condition is unclear. Rituxan can cause serious side effects, including infusion-related reactions (e.g., bronchospasm, hypoxia, and acute respiratory distress syndrome)…

Read more

]]> 8c39d098b39322f0ed1a6d56576b7480 kenf became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/43616/ Wed, 11 Dec 2024 14:40:47 -0600 0