Pulmonary Fibrosis News Forums | Kristin | Activity https://pulmonaryfibrosisnews.com/forums/members/kristin-andrews/activity/ Activity feed for Kristin. Wed, 22 Apr 2026 02:03:37 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 f81e782305ac39acf55224887dfd4020 Kristin replied to the discussion Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-questions/#post-23972 Tue, 14 Apr 2020 17:24:00 -0500 Reply to Oxygen Questions

Hello Judi:

You are I are living the exact same lives, and it would be wonderful to compare notes. My mom recently went through a ‘flare’ and is still having issues.

Would it be possible to chat with you on the phone? I’ll send you a friend request, if you accept, I’ll send along my phone number…

Kristin

]]> db811eda58ad998e104ac46b871e155d Kristin replied to the discussion Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-questions/#post-23883 Thu, 09 Apr 2020 05:28:35 -0500 Reply to Oxygen Questions

Robert,

Thanks for the reply.

Live in MetroWest, corner of 495 and the Pike.  If you’re ever in the area, please lmk!

Beth Israel is a great hospital.  Went there for a cardiac MRI – their tech is amazing, and doc’s spoke TO me, not DOWN to me.

MGH is a huge disappointment.  My mom’s pcp prescribed nitrofurantoin, which almost killed her,… Read more

]]> 461b612a05a8ed6747bf553c0e69e5be Kristin replied to the discussion Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-questions/#post-23850 Mon, 06 Apr 2020 17:21:04 -0500 Reply to Oxygen Questions

Thank you both!

Lots of information… Bill, #6 – that is a huge concern of mine… if the power goes out, and I just purchased a backup generator that should cover mom’s two concentrators.  As it stands, her poc goes to 6 pulse, and that’s just not enough. She has no tanks available.

Looking for a support group in Massachusetts on… Read more

]]> 37a80b2dd4ed05e59e12bd5a60c899d7 Kristin replied to the discussion Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-questions/#post-23835 Sun, 05 Apr 2020 23:38:19 -0500 Reply to Oxygen Questions

Hello everyone!

A few more oxygen questions for you all, as our pulmonologist is just dreadful.  Never responds to any of my questions!  And he practices at the second best hospital in the country (?) Just dreadful!

Nasal cannulas… I’ve been reading that basic nasal cannulas aren’t meant for a flow rate above 5 or 6 lpm (?)  Then what are… Read more

]]> 207437324c5791a607b1f543ebe29e56 Kristin replied to the discussion Metformin (?) Status Update in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/metformin-status-update/#post-23440 Sun, 15 Mar 2020 04:28:38 -0500 Reply to Metformin (?) Status Update

Thanks, Charlene.

Caring for a 93 year old, I simply don’t have time to search through every thread.

And thanks for the response.  The reason why I ask about Metformin, is because my mom was prescribed Nitrofurantoin in December of 2016, and I’m sure you know what happened.  She was in MGH for 5 days with pneumonia.  I was livid.  Now, I try… Read more

]]> 04d736545a2553509abba6aae732a448 Kristin replied to the discussion Metformin (?) Status Update in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/metformin-status-update/#post-23411 Fri, 13 Mar 2020 03:52:58 -0500 Reply to Metformin (?) Status Update

Hi Jaime – thank you for responding.  Mom is on a low dose, only 250mg.  It seems that she has good days, and bad days with her fibrosis.  It’s like some days she requires more oxygen, and some days not so much.  Wondering if anyone else has had this happen?  I would definitely say that your IPF has been very good to you.  🙂  Again,… Read more

]]> c4f654c7bf99ee64526e6ded99ba3bdf Kristin replied to the discussion Metformin (?) Status Update in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/metformin-status-update/#post-23388 Wed, 11 Mar 2020 03:22:24 -0500 Reply to Metformin (?) Status Update

Thanks, Ken.  I’ve been reading about studies online stating that Metformin somehow lessens/reverses ILD.  While I’m very skeptical based upon all the reading I’ve done that this disease is irreversible, it was giving me some home to cling to.

Virginia: I haven’t been able to discuss the validity of any of these studies with my mom’s… Read more

]]> c359b2f0672b90998ae12e10d2c8ad47 Kristin started the discussion Metformin (?) Status Update in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/metformin-status-update/ Sun, 08 Mar 2020 15:36:05 -0500 Metformin (?) Status Update

Hello everyone.  I hope you are all well, and in good spirits.  This is a trying time for all of us with Covid-19.  I am now working from home full-time, and grocery shopping at Walmart at 10 pm om Friday evening each week.  Mom and I are going for coffee, and enjoying it in the germ-free confines of my car.  As you know, mom is 93 years old,… Read more

]]> 82713d81bffe75b26fc502b9bb3061eb Kristin posted an update: Things are ongoing here in Boston. We now have covid-19 […] https://pulmonaryfibrosisnews.com/forums/activity/p/18602/ Sun, 08 Mar 2020 15:00:20 -0500 Things are ongoing here in Boston. We now have covid-19 in the area. Just when we were emerging from cold and flu season. I’m working from home, so as not to potentially contract covid-19 and spread it to mom. Life just keeps getting us both down…

]]> 1 680aa4523fc9933eaf6a80541b33f01b Kristin and Karen Martin are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/16461/ Fri, 29 Nov 2019 14:44:20 -0600 0 9174c20476d22c6b47b9b8bfedae9b45 Kristin replied to the discussion Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-questions/#post-22127 Fri, 29 Nov 2019 04:43:28 -0600 Reply to Oxygen Questions

@casey

Hello Karen:

Thank you so much for the suggestions with regard to dressing my mom, while she is wearing her oxygen.  It is a learning experience for us both.  I try to allow her to dress herself to give hear some sense of independence.  I like to do things myself, and my mom feels the same.  I rigged up a hook in the bathroom that… Read more

]]> 53fdce031ee4fd4f1d6e7b5fdc887863 Kristin replied to the discussion Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-questions/#post-22020 Wed, 20 Nov 2019 03:47:48 -0600 Reply to Oxygen Questions

Thank you to everyone for the suggestions. 🙂 I’m so happy that I found you all! It’s so hard going through this alone! We have an appointment with MGH Cardiology tomorrow. It’s tough because the symptoms of heart failure mimic those of the ild/fibrosis, and mom has RVSP/elevated RA pressure, from her echo of a few weeks ago.  With regard… Read more

]]> 1c4780588f13dcc898479d4a27b82d60 Kristin started the discussion Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-questions/ Thu, 14 Nov 2019 20:52:40 -0600 Oxygen Questions

Hello… I’m the caregiver to my 93 year old mom. We live together, and I love caring for her. Questions:  It’s hard to wash and dress her in the morning, and put on pj’s in the evening while she’s wearing her oxygen, so we remove her cannula for these activities.  A few questions… is it ok to do this?  Her level goes from 89ish to 79ish, and… Read more

]]> 67d3cd33c4377b14b031903c8d92fdf2 Kristin posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/16188/#acomment-16208 Tue, 12 Nov 2019 21:55:45 -0600 Thank you, Mark. I’m caring for my 93 year old mom with this, trying to keep her symptoms at bay. She is on oxygen and I’m trying to keep her between 2 and 3, as her nose gets runny so easily with oxygen. I don’t know when this disease is going to get worse. Her cough is there, but they’re blaming post nasal drip from the oxygen… I just… Read more

In reply to - Kristin updated their profile ]]> 5835f0a7f4ead3c957435a091b52a852 Kristin posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/16190/#acomment-16207 Tue, 12 Nov 2019 21:50:30 -0600 Thank you. It’s very tough being a caregiver to my 93 year old mom with this disease. I don’t know what will happen when, and I’m trying to do the best I can to manage her symptoms. There’s no timeline with this, and I don’t know when it’s going to get worse. I just can’t understand it, so I hope you all can help me along the way… thank you!

In reply to - Kristin became a registered member ]]> f1d1ee2adf29909158ae1a99eb4ec78b Kristin became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/16190/ Tue, 12 Nov 2019 12:29:09 -0600 3 bbebae7541c2b15392e43858b1e8cf96 Kristin updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/16188/ Tue, 12 Nov 2019 03:24:46 -0600 3