Biography

Name

Kristin
Nickname

kristin
Year of Birth

1970
Gender

Female
Location

Boston, Massachusetts
Relationship

Caregiver
Short Bio

Caring for my 93 year old mother, with ILD/IPF.  She has me constantly worried. Right now she is on oxygen between 3L and 4L.  Swelling of feet,  erratic heartbeat, possible SVT.  Echo was three days ago.  Trying to diagnose her myself, constantly, as she hates going to the E/R – so do I.  MGH E/R is crazy.  Hoping you all might be able to assist us, I love her, and need her with me. Thank you!
Type of Diagnosis

IPF
Treatment / Medical Facility

Massachusetts General Hospital, Boston
Current medication regimen

Oxygen
Lung transplantation status

ineligible
Supplemental Oxygen

yes
Best advice for PF symptom management

Sorry, I’m learning from you all.  This is all new to me, and I’m very scared for my mom.
Are you currently taking an anti-fibrotic medication?

no
How did you find us?

Column Post
How long have you or the person that you are caring for had PF?

Since 2016
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