Pulmonary Fibrosis News Forums | Laureen Aschenbrenner | Activity https://pulmonaryfibrosisnews.com/forums/members/laurie/activity/ Activity feed for Laureen Aschenbrenner. Wed, 22 Apr 2026 18:29:45 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 7dd2a2f88d44534e0de81deb9ceaa004 Laureen replied to the discussion Medical Marijuana in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/medical-marijuana/#post-38798 Fri, 29 Aug 2025 20:54:11 -0500 Reply to Medical Marijuana

Can I ask a question? What benefit are you getting from edibles? I’m just curious. I’m not a fan of the way they make me feel, I get anxiety really bad, and that’s only eating half an edible. I have been on several medication combinations and now am on Ofev, for about 9 years now. About a year ago I had to go from 150 mg 2x day to just once… Read more

]]> 07d9abadbc280379e2077bbef4c74105 Laureen replied to the discussion Tell me about your PF diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/tell-me-about-your-pf-diagnosis/#post-38797 Fri, 29 Aug 2025 20:44:21 -0500 Reply to Tell me about your PF diagnosis

From my 1st appt for a persistent dry cough, having xrays done (ordered by a nurse practioner), diagnosed with pneumonia, given antibiotics, going back, having my PCP look at the xrays, know it wasn’t pneumonia, immediately sent me to a pulmonologist. Was given a walking test and scheduled for a bronchoscopy and diagnosed with IPF. That…

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]]> 5f4817b526813aa6805f4a7ba74e1311 Laureen replied to the discussion Waiting in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/waiting/#post-36836 Wed, 27 Mar 2024 15:15:17 -0500 Reply to Waiting

Yes, find a new pulminologist! I see Dr. Ganesh Raghu at the University of Washington. He is internationally known for his research and treatment of IPF. I know there are different forms of the disease. If you can’t travel to the UW, I would see if you could call and see if they could recommend one in your area.

]]> 2602302716c312c01660ff3dabf12666 Laureen replied to the discussion The End in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/the-end/#post-36712 Fri, 01 Mar 2024 15:46:18 -0600 Reply to The End

I was diagnosed almost 22 years ago, still not on oxygen. I was told 4 to 5 year life expectation from diagnosis. I was getting worse, then when Ofev became available, things started improving. Side effects can be difficult at times. I truly believe faith and attitude has been a huge factor in my survival. I made goals for myself,…

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]]> d39c4f6ca039746fe3bff838703a6093 Laureen replied to the discussion Cost of Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/cost-of-ofev/#post-34362 Wed, 08 Feb 2023 17:06:02 -0600 Reply to Cost of Ofev

I take Ofev, and do so by a grant that I applied for. My supplemental insurance to Medicare does cover the bulk of the cost, and the grant pays for the balance. Talk with your care team and find out if they can help you with how to get started with the process. I am away from home right now so don’t have information at my fingertips.

I have… Read more

]]> 13461e449c8ddfca9ff20cc5278f2e48 Laureen replied to the discussion Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/life-span/#post-34194 Wed, 18 Jan 2023 23:55:11 -0600 Reply to Life span

I was diagnosed with basically the same information.  I am happy to say, I am on year 20.  I know I’m not the norm.  The first year was the roughest, but mostly getting the medd to a tolerable level.  I’m a firm believer in positive attitude, I had young children, and was basically told I wouldn’t be around to watch them graduate.  My doctor… Read more

]]> 4e38d790b4b9efefc8fdc56d89c3a214 Laureen posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/32792/#acomment-32848 Fri, 22 Apr 2022 03:49:32 -0500 Thank you.

In reply to - Laureen became a registered member ]]> edbef0e9049fa4306b998aa2f9a88d47 Laureen became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/32792/ Wed, 20 Apr 2022 13:52:19 -0500 2