Pulmonary Fibrosis News Forums | Mary Black | Activity https://pulmonaryfibrosisnews.com/forums/members/maryeblack/activity/ Activity feed for Mary Black. Fri, 24 Apr 2026 19:55:09 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 68d40243488ad8e88faa843fed038e4d Mary replied to the discussion How quickly can pulmonary fibrosis progress? in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/how-quickly-can-pulmonary-fibrosis-progress/#post-36000 Thu, 28 Sep 2023 22:43:09 -0500 Reply to How quickly can pulmonary fibrosis progress?

So glad the info helped. This new info following my August doc appt.

Still on OFEV 200daily. Diarehea stopped, constipation began. Very difficult time. Followed OTC meds that helped constipation but GI pain began.

This lead led to GI consult, new med for stomach pain -Esomeprazole. Really helped. GI Also ordered scan indicating…

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]]> 18142459f146201f85d7c2266a12286f Mary replied to the discussion How quickly can pulmonary fibrosis progress? in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/how-quickly-can-pulmonary-fibrosis-progress/#post-35382 Wed, 12 Jul 2023 04:10:08 -0500 Reply to How quickly can pulmonary fibrosis progress?

I was diagnosed in 2005when my GP scheduled appt at Mayo Clinic Scottsdale. No symptoms that I was aware of. The Mayo pulmonologist said at that time I have 5 years if I’m lucky.
Several years nothing was happening and I actually thought I was given incorrect diagnosis. I retired, started part time retail, a few years before Covid. The nature… Read more

]]> 52aa0a88a4282b114404ca1432546b3f Mary replied to the discussion How quickly can pulmonary fibrosis progress? in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/how-quickly-can-pulmonary-fibrosis-progress/#post-35381 Wed, 12 Jul 2023 04:06:57 -0500 Reply to How quickly can pulmonary fibrosis progress?

I was diagnosed in 2005when my GP scheduled appt at Mayo Clinic Scottsdale. No symptoms that I was aware of. The Mayo pulmonologist said at that time I have 5 years if I’m lucky.
Several years nothing was happening and I actually thought I was given incorrect diagnosis. I retired, started part time retail, a few years before Covid. The nature… Read more

]]> f32fa4a10f4e4c0aa71cbc28c5aa1f4d Mary replied to the discussion Arizona Summertime heat in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/arizona-summertime-heat/#post-35371 Tue, 11 Jul 2023 21:03:11 -0500 Reply to Arizona Summertime heat

I, too, stay inside as I find it difficult to catch my breath when outdoors.

]]> 86e3e78911b7d0d992b27f5990bb2919 Mary replied to the discussion Split Ofev doseages in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/split-ofev-doseages/#post-35306 Fri, 30 Jun 2023 02:01:45 -0500 Reply to Split Ofev doseages

I took ofev for 2 years with nausea/diarrhea. Stopped in December. I discussed with my pulmonologist- he reduced me to 100 twice a day.
Feel like I have my life back.
Unrelated but currently having GI problems with pituitary. (Hope not result of ofev).

My next pulmonary doc appt in August. I’ll report back with news.

]]> afdb03b4e4e79887a6cb219aceb2265d Mary replied to the discussion Serrapeptase and nattokinase and Ofev in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/serrapeptase-and-nattokinase-and-ofev/#post-34952 Tue, 25 Apr 2023 21:48:48 -0500 Reply to Serrapeptase and nattokinase and Ofev

When you stopped what happened?

How long were you off meds?

]]> d282271376df10f36ef5f198829cd7f0 Mary posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/29757/#acomment-38369 Thu, 20 Apr 2023 01:10:04 -0500 I tried to register so I could post SEVERAL TIMES but was unsuccessful. Had to keep repeating changing my password.
So I just stopped trying.
Then today, I had to responded to another member of our cohort because of the Runny/blocked nose symptoms I successfully stopped and wanted to share how I did it.
After spending a couple of hours… Read more

In reply to - Mary became a registered member ]]> 3b035d5dfbbe790fcd80bbaaa70f7b67 Mary posted an update: I have similar problem with runny or stuffed nose […] https://pulmonaryfibrosisnews.com/forums/activity/p/38368/ Thu, 20 Apr 2023 00:23:16 -0500 I have similar problem with runny or stuffed nose from plastic tubing/nose piece. I tried changing tubing and nose piece more often because I think it becomes unsterile and full of bacteria from my nose. It worked for me instantly/overtime.

]]> 0 8b044bdc14d4020ea81ebb45d2d0e071 Mary replied to the discussion New Zoom meeting - taking the bull by the horn in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/new-zoom-meeting-taking-the-bull-by-the-horn/#post-33434 Tue, 01 Nov 2022 19:53:03 -0500 Reply to New Zoom meeting - taking the bull by the horn

    <li style=”text-align: left;”>I would welcome Zoom Meetings
]]> 86202bbb50021ffa34b1312dc074a252 Mary updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/29782/ Mon, 27 Sep 2021 06:34:30 -0500 0 72f6f3e3d3e17d6e57668ebc815ab55e Mary became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/29757/ Sun, 26 Sep 2021 20:42:32 -0500 2