Pulmonary Fibrosis News Forums | mike fryman | Activity https://pulmonaryfibrosisnews.com/forums/members/mikefrymn/activity/ Activity feed for mike fryman. Wed, 22 Apr 2026 02:03:37 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 46b7a809c3b5f33edd68d159850165e9 mike fryman replied to the discussion When You Don't Want to Talk About PF Appointments in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/when-you-dont-want-to-talk-about-pf-appointments/#post-32869 Wed, 10 Aug 2022 07:26:25 -0500 Reply to When You Don't Want to Talk About PF Appointments

I find my self thinking of things after my appts, i have a tendency of making everything better than it really is.  I have been dx and on O2 3 years, it gets hard as i really don’t know how i am doing.  I know my strength is slowly decreasing but i can ride my recumbent bike, move half the yard(not big) slowly, weed wack.  It sounds like i am… Read more

]]> 5a9442ec6aa7c6a83a985872dfb71184 mike fryman replied to the discussion Taking Cellcept (mycophenolate) PLUS Ofev in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/taking-cellcept-mycophenolate-plus-ofev/#post-30721 Tue, 11 Jan 2022 22:03:01 -0600 Reply to Taking Cellcept (mycophenolate) PLUS Ofev

Ter ann, i also lost ability to eat dairy, so no cheese, butter, breaded stuff.  It is hard, at times some thing maybe prepared with butter but i know pretty quick, as i start coughing.  Am on meds and O2 for last 2 years.  Hang in there .  Mike

]]> 59ed0108ea87a247675ff4b5d093b2d0 mike fryman replied to the discussion High protein vegetarian meals. in the forum Healthy Recipe Sharing https://pulmonaryfibrosisnews.com/forums/forums/topic/high-protein-vegetarian-meals/#post-30720 Tue, 11 Jan 2022 21:57:03 -0600 Reply to High protein vegetarian meals.

I am unfortunately IPF also, for about 2 years.  I have developed allergy, i guess, but i get very conjested when i eat dairy.  So cheese, butter  and milk products are out.  I do beans, i still eat lean hamberger, though not a great meat eater.  Love nuts, pistachio’s have good protein.  Have tried tofu, but it is all in the preperation and i… Read more

]]> 6e9dce081613c37c7445823b998a922c mike fryman replied to the discussion Being discharged with ipf - is it normal in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/being-discharged-with-ipf-is-it-normal/#post-30648 Thu, 23 Dec 2021 22:01:57 -0600 Reply to Being discharged with ipf - is it normal

Marg is your husband on ofev,  where is Aintree.  It doesn’t seem right that a pt with IPF would not be followed by a pulmonologist throughout their illness.

I was dx with IPF about 1 1/2 years ago, have been on O2 24/7 since.  I think i am doing OK, you never really know as there is so little for real info out there.

I presently live at… Read more

]]> 06521dbeef73c32edb8ec3bb8f447a3a mike fryman replied to the discussion Prospective change of meds: OFEV to Perfenidone in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/prospective-change-of-meds-ofev-to-perfenidone/#post-30650 Thu, 23 Dec 2021 21:14:46 -0600 Reply to Prospective change of meds: OFEV to Perfenidone

I have been on ofev for about a year and a half and think i am doing OK.  PFT’s seem to remain the same, which is a good thing, as they say the ofev is stopping the progression, at least i hope so.

I am thinking of selling house 7500ft altitude and moving to 4500ft, has anyone done this.  Is a change in altitude a significan thing for… Read more

]]> 99e66b0fc34c10c7030295dd9b98a2e4 mike fryman replied to the discussion Being discharged with ipf - is it normal in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/being-discharged-with-ipf-is-it-normal/#post-30649 Thu, 23 Dec 2021 21:07:57 -0600 Reply to Being discharged with ipf - is it normal

Why is my post waiting for moderation, what does that mean?

]]> bfbc369010c7bfb56379f489171ca195 mike fryman replied to the discussion Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-nasal-drip-another-ailment-to-deal-with/#post-30331 Tue, 02 Nov 2021 19:34:02 -0500 Reply to Post-nasal Drip: Another Ailment to Deal With

I was dx about 1 1/2 yr ago  on O2 24/7 and take ofev and cellcept.  Claritan does help but i still have runny nose at times.  I do use Ayr ointment in nostrils at night which i think helps me get some sleep.  And my lord sleeping is an issue.  I have IPF i guess sound sleep is one of the losses.  Does any one who is on my meds think they… Read more

]]> db09cf78f2ddf304730e77a9f9055492 mike fryman became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/21423/ Sat, 25 Jul 2020 20:53:28 -0500 1