Good morning.  When I read about funding for patients through NORD.  I called and spoke with someone and I gave her my details and how expenses have increased due to COVID-19.  She explained that she was only taking information and that someone else would be getting back to me.  I realized that there are many that qualify, therefore I did not… Read more

Hello, I am sorry to hear you are having so much trouble being diagnosed.  My doctor started with a chest x-ray, moved to the CT scan or MRI.  From that I went to a surgeon for a lung biopsy and that gave my pulmonologist the definitive answer.  February of 2019 I started oxygen but I have been on Prednisone for about eight years, which has… Read more

Hello  Charlene.  I was diagnosed with pulmonary fibrosis seven years ago and with pulmonary hypertension 2 1/2 years ago.  I was hospitalized on February 14 because of my breathing.  I too am on 02.  I used the 02 until about 2 months ago, doing well.  This past Sunday it was so hot in the church that I could barely breathe.  I  went to my… Read more